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7/11/3

Forums Caregiver Community 7/11/3

  • Post
    Charlie S
    Participant

      That is how aldesleukin also known as Interleukin-2 is coming into me one bag at at a time every eight hours.

      Nine bags so far I think since starting Monday morning at 7. 

      As expected, this one week on after one week off is really giving me a chemical ass whipping.

      My eyes are running and boy does it burn.

      I am sweating a lot and that burns too.    And all of the juice coming out of me stinks……………..I mean REALLY stinks, I smell like a toxic waste dump.

      The rigors ( shakes, chills, whatever you want to call them) are worse this time and came on faster.  Thank goodness for the demorol that stops it.

      My skin had not finished the first peel before coming back, and it is now……………..well it is a mess.

      I have a tablet (as in a Big Chief paper Tablet)beside of me and all through the day and I scribble what I would say in a post or just scribble,  then, all through the rest of the day I pluck away in my digital journal on my laptop and after many hours, I paste it and  it becomes this post.

      I'm the only melanoma person here in ICU doing IL-2 this time.  Everyone else are renal cell folks.

      This is no cup of tea for me, but it seems lke the other five people here getting IL-2 are having a tougher time.

      Don't know, but everyone else here except me have people staying with them and at the risk of sounding crass……it seems  to me that the caregivers are causing the ICU nurses more trouble than the patients.

      I think this has taken me two days to compose,, edit and spell check. so I'll go ahead and post.

      My mind is really starting to turn me into a strange ranger, so dunno if I can go more than 12 or not.

      Chemically yours,

       

      Charlie S

       

       

       

       

       

       

    Viewing 11 reply threads
    • Replies
        Bubbles
        Participant

          Hang in there, Charlie!!!  You are one tough cookie!!  c

          Bubbles
          Participant

            Hang in there, Charlie!!!  You are one tough cookie!!  c

            Bubbles
            Participant

              Hang in there, Charlie!!!  You are one tough cookie!!  c

              jenny22
              Participant

                WOW…..OH Charlie….sounds like a tough go….I cant even imageine, but as Celeste said, You are one tough cookie!  you must be apparently….I sure as hell hope it works again and you can be done with this.

                Sending good wishes,

                Best,

                Jenny

                 

                jenny22
                Participant

                  WOW…..OH Charlie….sounds like a tough go….I cant even imageine, but as Celeste said, You are one tough cookie!  you must be apparently….I sure as hell hope it works again and you can be done with this.

                  Sending good wishes,

                  Best,

                  Jenny

                   

                  jenny22
                  Participant

                    WOW…..OH Charlie….sounds like a tough go….I cant even imageine, but as Celeste said, You are one tough cookie!  you must be apparently….I sure as hell hope it works again and you can be done with this.

                    Sending good wishes,

                    Best,

                    Jenny

                     

                    Gwen in Maine
                    Participant

                      You got this, Charlie! Thinking of you.

                      Gwen

                      Gwen in Maine
                      Participant

                        You got this, Charlie! Thinking of you.

                        Gwen

                        Gwen in Maine
                        Participant

                          You got this, Charlie! Thinking of you.

                          Gwen

                          DZnDef
                          Participant

                            Your courage and determination to get through this will win out.  Whatever it takes to blast the beast out of your system!  I'm hoping this does it for you once and for all!

                            DZnDef
                            Participant

                              Your courage and determination to get through this will win out.  Whatever it takes to blast the beast out of your system!  I'm hoping this does it for you once and for all!

                              DZnDef
                              Participant

                                Your courage and determination to get through this will win out.  Whatever it takes to blast the beast out of your system!  I'm hoping this does it for you once and for all!

                            Viewing 11 reply threads

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