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- This topic has 12 replies, 4 voices, and was last updated 8 years, 4 months ago by DZnDef.
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- May 19, 2016 at 4:34 am
That is how aldesleukin also known as Interleukin-2 is coming into me one bag at at a time every eight hours.
Nine bags so far I think since starting Monday morning at 7.
As expected, this one week on after one week off is really giving me a chemical ass whipping.
My eyes are running and boy does it burn.
I am sweating a lot and that burns too. And all of the juice coming out of me stinks……………..I mean REALLY stinks, I smell like a toxic waste dump.
The rigors ( shakes, chills, whatever you want to call them) are worse this time and came on faster. Thank goodness for the demorol that stops it.
My skin had not finished the first peel before coming back, and it is now……………..well it is a mess.
I have a tablet (as in a Big Chief paper Tablet)beside of me and all through the day and I scribble what I would say in a post or just scribble, then, all through the rest of the day I pluck away in my digital journal on my laptop and after many hours, I paste it and it becomes this post.
I'm the only melanoma person here in ICU doing IL-2 this time. Everyone else are renal cell folks.
This is no cup of tea for me, but it seems lke the other five people here getting IL-2 are having a tougher time.
Don't know, but everyone else here except me have people staying with them and at the risk of sounding crass……it seems to me that the caregivers are causing the ICU nurses more trouble than the patients.
I think this has taken me two days to compose,, edit and spell check. so I'll go ahead and post.
My mind is really starting to turn me into a strange ranger, so dunno if I can go more than 12 or not.
Chemically yours,
Charlie S
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