36 week scan results on Clinical Trial with Ipi (Yervoy) and GMCSF
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36 week scan results on Clinical Trial with Ipi (Yervoy) and GMCSF

› Forums › Caregiver Community › 36 week scan results on Clinical Trial with Ipi (Yervoy) and GMCSF

  • Post
    • November 12, 2011 at 3:26 pm
    Gene_S
    Participant

    Gene had his 36 week scans and we got the great results of over 63% regression with some lesions being totally gone.  He is on the maintenance phase of the Ipi and gets infusions every 12 weeks after the initial 4 infusions  while taking the GMCSF self injections for 14 days then 7 off the entire time.

    Here's to hoping for NED sometime in the near future.

    In November 2010 he was diagnosed Stage IV and things were looking pretty bleak and now we can see the light at the end of the tunnel.

    Gene had his 36 week scans and we got the great results of over 63% regression with some lesions being totally gone.  He is on the maintenance phase of the Ipi and gets infusions every 12 weeks after the initial 4 infusions  while taking the GMCSF self injections for 14 days then 7 off the entire time.

    Here's to hoping for NED sometime in the near future.

    In November 2010 he was diagnosed Stage IV and things were looking pretty bleak and now we can see the light at the end of the tunnel.

    Here's hoping this helps someone else see the glimmer of hope with this drug and that it will give others hope in there medications as well.  I hope the other warriors of this disease can continue to fight and beat it.

    Judy (loving wife and caregiver of Gene)

Viewing 17 reply threads
  • Replies
      • November 12, 2011 at 4:29 pm
      triciad
      Participant

      This is WONDERFUL news!  I am so happy for both of you and pray for Gene's continued success!

      Tricia

      • November 12, 2011 at 4:29 pm
      triciad
      Participant

      This is WONDERFUL news!  I am so happy for both of you and pray for Gene's continued success!

      Tricia

      • November 12, 2011 at 4:29 pm
      triciad
      Participant

      This is WONDERFUL news!  I am so happy for both of you and pray for Gene's continued success!

      Tricia

      • November 13, 2011 at 3:29 am
      ad2424
      Participant

      Hi Judy

      I hope to one day be in a position to see regression. When reading your post, I was wondering who gave you a figure of 63%? I am an accountant and so I get hung up on numbers. 63% is so precise. Thanks.

       

      Steven

        • November 13, 2011 at 1:53 pm
        Gene_S
        Participant

        Hello Steven,

        The Dr. takes the measurements of all the tumors everytime a scan is done and from the beginning in March until now the percentage is over 63% regression.  Some have totally disappeared while others internally are moving more slowly.  The one pressing on the spine up at the first few vertebre and that was inoperable is totally gone.  Gene is also on the 10mg/kg dosage Clinical Trial and is in the maintenance meaning he got the first 4 treatments every 3 weeks and now he gets a treatment every 12 weeks.

        I hope this helps.

        Judy

        • November 13, 2011 at 1:53 pm
        Gene_S
        Participant

        Hello Steven,

        The Dr. takes the measurements of all the tumors everytime a scan is done and from the beginning in March until now the percentage is over 63% regression.  Some have totally disappeared while others internally are moving more slowly.  The one pressing on the spine up at the first few vertebre and that was inoperable is totally gone.  Gene is also on the 10mg/kg dosage Clinical Trial and is in the maintenance meaning he got the first 4 treatments every 3 weeks and now he gets a treatment every 12 weeks.

        I hope this helps.

        Judy

        • November 13, 2011 at 1:53 pm
        Gene_S
        Participant

        Hello Steven,

        The Dr. takes the measurements of all the tumors everytime a scan is done and from the beginning in March until now the percentage is over 63% regression.  Some have totally disappeared while others internally are moving more slowly.  The one pressing on the spine up at the first few vertebre and that was inoperable is totally gone.  Gene is also on the 10mg/kg dosage Clinical Trial and is in the maintenance meaning he got the first 4 treatments every 3 weeks and now he gets a treatment every 12 weeks.

        I hope this helps.

        Judy

      • November 13, 2011 at 3:29 am
      ad2424
      Participant

      Hi Judy

      I hope to one day be in a position to see regression. When reading your post, I was wondering who gave you a figure of 63%? I am an accountant and so I get hung up on numbers. 63% is so precise. Thanks.

       

      Steven

      • November 13, 2011 at 3:29 am
      ad2424
      Participant

      Hi Judy

      I hope to one day be in a position to see regression. When reading your post, I was wondering who gave you a figure of 63%? I am an accountant and so I get hung up on numbers. 63% is so precise. Thanks.

       

      Steven

      • November 13, 2011 at 3:36 am
      momof2kids
      Participant

      This is great news to hear as a fellow IPI / Yervoy with my 1st scans coming up…SO NERVOUS.

       

      Hope it continues to go well for you guys!

        • November 13, 2011 at 1:54 pm
        Gene_S
        Participant

        I hope all goes well for you and that you also have success.

        • November 13, 2011 at 1:54 pm
        Gene_S
        Participant

        I hope all goes well for you and that you also have success.

        • November 13, 2011 at 1:54 pm
        Gene_S
        Participant

        I hope all goes well for you and that you also have success.

      • November 13, 2011 at 3:36 am
      momof2kids
      Participant

      This is great news to hear as a fellow IPI / Yervoy with my 1st scans coming up…SO NERVOUS.

       

      Hope it continues to go well for you guys!

      • November 13, 2011 at 3:36 am
      momof2kids
      Participant

      This is great news to hear as a fellow IPI / Yervoy with my 1st scans coming up…SO NERVOUS.

       

      Hope it continues to go well for you guys!

      • November 13, 2011 at 3:49 am
      FormerCaregiver
      Participant

      Judy, this is great news!  I think that Yervoy and GM-CSF (Leukine) make an interesting combination. There are good reasons to hope that they will continue to be effective.

      Take care

      Frank from Australia

        • November 13, 2011 at 5:25 pm
        NYKaren
        Participant

        Judy, fantastic news!

        I'm so happy for Gene and his wonderful caregiver.

        Be well,

        kare

        • November 13, 2011 at 5:25 pm
        NYKaren
        Participant

        Judy, fantastic news!

        I'm so happy for Gene and his wonderful caregiver.

        Be well,

        kare

        • November 13, 2011 at 5:25 pm
        NYKaren
        Participant

        Judy, fantastic news!

        I'm so happy for Gene and his wonderful caregiver.

        Be well,

        kare

      • November 13, 2011 at 3:49 am
      FormerCaregiver
      Participant

      Judy, this is great news!  I think that Yervoy and GM-CSF (Leukine) make an interesting combination. There are good reasons to hope that they will continue to be effective.

      Take care

      Frank from Australia

      • November 13, 2011 at 3:49 am
      FormerCaregiver
      Participant

      Judy, this is great news!  I think that Yervoy and GM-CSF (Leukine) make an interesting combination. There are good reasons to hope that they will continue to be effective.

      Take care

      Frank from Australia

      • November 13, 2011 at 10:38 pm
      MariaH
      Participant

      Congratulations to the both of you.  It is so wonderful hearing good news!

      • November 13, 2011 at 10:38 pm
      MariaH
      Participant

      Congratulations to the both of you.  It is so wonderful hearing good news!

      • November 13, 2011 at 10:38 pm
      MariaH
      Participant

      Congratulations to the both of you.  It is so wonderful hearing good news!

      • November 14, 2011 at 2:00 pm
      Gene_S
      Participant

      Thank you all for your kind words.

      • November 14, 2011 at 2:00 pm
      Gene_S
      Participant

      Thank you all for your kind words.

      • November 14, 2011 at 2:00 pm
      Gene_S
      Participant

      Thank you all for your kind words.

Viewing 17 reply threads

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