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2 years, 21 months since start of Ipi (3mg) Adjuvant trial– NED

Forums Ocular Melanoma Community 2 years, 21 months since start of Ipi (3mg) Adjuvant trial– NED

  • Post
    katie1
    Participant

    My husband (IIIC-11 mm amelanotic nodular melanoma) is participating in the Ipi vs Interferon adjuvant trial.  He received all the induction infusions (3mg arm) but did not receive any maitenance doses due to toxic side effects (grade 4 hypophysitis).  He had many side effects from the Ipilimumab (dermatologic, ocular, neurologic, gastro-intestinal and endocrine). All have mostly resolved except that he has permanent adrenal insufficiency.  He remains NED.  Hoping this might give hope to those who may have started the trial more recently.

    Kate

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      Squash
      Participant

      That was a big melanoma, 11mm amelanotic nodular melanoma!

      Mine was also amelanotic nodular 6.5mm.

      The doctors didnt expect me to be around for very long.

      It just goes to show how unpredictable melanoma can be.

      People can have much smaller ones and end up with worse disease.

      Congratulations on NED status.

      I am 18 months out and going quite well. I havent done any treatments at all because i am afraid of all the side effects like your husband has gone thru.

      Good luck for the future.

       

       

       

       

       

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      Squash
      Participant

      That was a big melanoma, 11mm amelanotic nodular melanoma!

      Mine was also amelanotic nodular 6.5mm.

      The doctors didnt expect me to be around for very long.

      It just goes to show how unpredictable melanoma can be.

      People can have much smaller ones and end up with worse disease.

      Congratulations on NED status.

      I am 18 months out and going quite well. I havent done any treatments at all because i am afraid of all the side effects like your husband has gone thru.

      Good luck for the future.

       

       

       

       

       

      Loading spinner
      Squash
      Participant

      That was a big melanoma, 11mm amelanotic nodular melanoma!

      Mine was also amelanotic nodular 6.5mm.

      The doctors didnt expect me to be around for very long.

      It just goes to show how unpredictable melanoma can be.

      People can have much smaller ones and end up with worse disease.

      Congratulations on NED status.

      I am 18 months out and going quite well. I havent done any treatments at all because i am afraid of all the side effects like your husband has gone thru.

      Good luck for the future.

       

       

       

       

       

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