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2 years, 21 months since start of Ipi (3mg) Adjuvant trial– NED
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2 years, 21 months since start of Ipi (3mg) Adjuvant trial– NED

› Forums › Ocular Melanoma Community › 2 years, 21 months since start of Ipi (3mg) Adjuvant trial– NED

  • Post
    • March 19, 2015 at 11:03 pm
    katie1
    Participant

      My husband (IIIC-11 mm amelanotic nodular melanoma) is participating in the Ipi vs Interferon adjuvant trial.  He received all the induction infusions (3mg arm) but did not receive any maitenance doses due to toxic side effects (grade 4 hypophysitis).  He had many side effects from the Ipilimumab (dermatologic, ocular, neurologic, gastro-intestinal and endocrine). All have mostly resolved except that he has permanent adrenal insufficiency.  He remains NED.  Hoping this might give hope to those who may have started the trial more recently.

      Kate

    Viewing 2 reply threads
    • Replies
        • March 20, 2015 at 12:25 am
        Squash
        Participant

          That was a big melanoma, 11mm amelanotic nodular melanoma!

          Mine was also amelanotic nodular 6.5mm.

          The doctors didnt expect me to be around for very long.

          It just goes to show how unpredictable melanoma can be.

          People can have much smaller ones and end up with worse disease.

          Congratulations on NED status.

          I am 18 months out and going quite well. I havent done any treatments at all because i am afraid of all the side effects like your husband has gone thru.

          Good luck for the future.

           

           

           

           

           

          • March 20, 2015 at 12:25 am
          Squash
          Participant

            That was a big melanoma, 11mm amelanotic nodular melanoma!

            Mine was also amelanotic nodular 6.5mm.

            The doctors didnt expect me to be around for very long.

            It just goes to show how unpredictable melanoma can be.

            People can have much smaller ones and end up with worse disease.

            Congratulations on NED status.

            I am 18 months out and going quite well. I havent done any treatments at all because i am afraid of all the side effects like your husband has gone thru.

            Good luck for the future.

             

             

             

             

             

            • March 20, 2015 at 12:25 am
            Squash
            Participant

              That was a big melanoma, 11mm amelanotic nodular melanoma!

              Mine was also amelanotic nodular 6.5mm.

              The doctors didnt expect me to be around for very long.

              It just goes to show how unpredictable melanoma can be.

              People can have much smaller ones and end up with worse disease.

              Congratulations on NED status.

              I am 18 months out and going quite well. I havent done any treatments at all because i am afraid of all the side effects like your husband has gone thru.

              Good luck for the future.

               

               

               

               

               

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