MRF-Logo2019-Horizontal-RGB
Re: shifting gears – need urgent info on any fin. aid …
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Re: shifting gears – need urgent info on any fin. aid …

› Forums › General Melanoma Community › shifting gears – need urgent info on any fin. aid programs for Temodar › Re: shifting gears – need urgent info on any fin. aid …

    • August 19, 2010 at 2:34 am
    Kevin from Atlanta
    Participant

      Buying off of the internet each dose(pill) of Temodar cost about $150.  I took Temodar for two years with numerous other chemo's but eveyone says fatgue is the biggest side effect. I had wide brain raditation 30 days ago. The radiation itself is no big deal. I am currently experiencing confusion and memory loss. I was hoping that it would start going away by now. The Onc has me on Ritalin to help me focus and help keep me awake during the day. I no longer take Temodar since I am in compassionate use trial with Ipi.

      Update, tonight I actually dusted off my treadmill and used it for the first time in years. A 1/4 of a mile, but it is a start.

      Yesterday, I actually vaccumed the downstairs for the first time in a year. I am picking up a little energy as I get further away from the chemo treatments.

       

    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

    Popular Topics