- August 28, 2010 at 11:52 am
I'll call Dr. Smylie on Monday. This is really fabulous information. My mom did have an SNB (sentinol node biopsy?) and it was positive for melanoma (1.3 cm tumor, extracapsular extension). 5 of 9 nodes were positive with evidence of in-transit mets. Last night, she found 25 more spots on her chest (the original lesion was on her foot), so it looks like the lesions are spreading quickly and are no longer just confined to her leg. She is very scared. She also has a sizable lump in her leg under the skin. The original lesion was Breslow Level V, if I remember correctly; it had been an open wound for 8 months before a Dr finally biopsied it and started us down this path.
This is all very scary, but hearing your proactive solutions and success stories is incredibly helpful and makes the next journey sound manageable. Thank you for your generosity. I will absolutely call Dr. Smylie on Monday.
I should also say that we've paid for a few consults at Fred Hutchinson. Perhaps that will be a good option as well (although expensive). I am on the East Coast, so I'll also call NIH.