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Re: Question:

Forums General Melanoma Community Question: Re: Question:

    Kim K
    Participant

      I am a complete responder to IL-2.  Yes, you do get sick but they have drugs for all that and you wind up sleeping through most.  Jane from Main has the IL-2 tip sheet which I used and added to.  It is doable and when you are finished, you rapidly recover and it is over with.  You respond or don't.  If you partially respond they give you enough of a break to actually consider doing it again = lol.

      I did 13 and then 10 bags for a total of 23.  It works best with minimal mets, so once your brain is clear, it is worth it.  If you fall in the 6% club who have a complete response, the chances of you being here for 5 years are terriffic.  In addition, 60% of that 6% are still setting the survival curve ex 20 yrs. plus!  Nothing to this date compares to that long term.  If you are healthy enough to try it, go for it.  At least you will find out pretty quickly if it works for your or not.

      Best of luck, sounds like a good game plan,

      Kim K – NED with IL-2 stage IV, 2 mos.

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