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Re: Newly diagnosed Stage IV, just started Dacarbazine – Im …

    lhaley
    Participant

      Simone,

      What your feeling is natural.  While many have given you advice on treatment possibilities they are also reaching out to let you know your not alone.  We've all been frightened at some point on this journey.

      While I can't give you suggestions on treatment I do agree with other posters that you have to have a plan inplace incase the DTIC does not work.  Continue on what your doing but also make an appointment with another Dr. at the same time and get his options.  If you willing to travel look into arrangements now so it would only be a simple phone call to activate your next plan of action.   Everytime you get a scan, ask for a cd copy of it as well as the written report.  Organize now, to help you fight later!! 

      Use the chat group when really feeling alone or pick a few people you can relate to and e-mail them. Someone will respond. It's amazing how much it helps to have someone be your e-mail confident through out all of this.

      Wishing you the best,

      Linda 

      Stage IV NED 1 year (pending results of fna this afternoon)

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