MRF-Logo2019-Horizontal-RGB
Re: Limb Amputation- acral melanoma
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Re: Limb Amputation- acral melanoma

› Forums › General Melanoma Community › Limb Amputation- acral melanoma › Re: Limb Amputation- acral melanoma

    • August 2, 2010 at 6:25 pm
    SusanE
    Participant

      Hi Tim. Thank you for your kind words. Jerry is ckit negative. We were soooo crushed when we received that news. We had such high hopes that we were as Jerryfromfauq had told us about gleevac.

      It doesn’t make sense to me how they can find treatments for mutations but they don’t seem to have treatments when you don’t have mutations or maybe it is just finding the mutation we do have. It is hard to understand. Or maybe because we don’t have mutations, Jerry might respond to IL2 or Ipilimumab. I wish there was a way to "who" has responded to "what" treatment- not just who the person is but exact detail on the melanoma and what treatment it responded to. Like who has responded to IL2 and what are the specifics on their melanoma, their blood type, etc. The bad with knowing it all is that it could limit treatment too and hope too.

      Sorry to ramble and thanks again,

      Susan

       

    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

    Popular Topics