MRF-Logo2019-Horizontal-RGB
Re: I could REALLY use some advice/encouragement
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Re: I could REALLY use some advice/encouragement

› Forums › General Melanoma Community › I could REALLY use some advice/encouragement › Re: I could REALLY use some advice/encouragement

    • August 17, 2010 at 8:48 pm
    triciad
    Participant

      Hi Pam,

      I, too, am from NJ.  Last summer, I was diagnosed stage 3B at age 44.  I chose to do the Interferon because I felt someone has to be in the 10% it works for…why not me?

      I saw Dr. Wolchok at Sloan Kettering.  He was wonderful, but he wanted me to do a trial with Ipi.  Half of the people get the drug and the other half get the placebo.  I wasn't comfortable with a 50% chance of not getting the drug, and therefore, doing nothing.  Sloan doesn't even offer Interferon because of its low stats.  If you decide to go with Interferon, you will have to find another place to get it.  I'm at Hackensack.

      Bottom line, I've been on Interferon since October 2009.  I am looking forward to finishing my self inections in October of this year.  I'm tired but not dead.  I worked throughout the treatments.  Everyone responds differently.  Some people can't get off the couch; others can.   That's the most frustrating part of all of this…the uncertainty and vastly different opinions/reactions.  In the end, you have to go with what you feel is the right decision for YOU…and never look back because you made the right decision.  Most importantly, stay positive; attitude is everything!!!!

      Please feel free to email me if you have any other questions or need help.

      Good luck with everything!

      Tricia

    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

    Popular Topics