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Re: Anyone enrolled in IPI/Temodar trial at MDA in Houston?

Forums General Melanoma Community Anyone enrolled in IPI/Temodar trial at MDA in Houston? Re: Anyone enrolled in IPI/Temodar trial at MDA in Houston?

    skysar
    Participant

      Jeff:

      We are in Florida this week for a some R&R before I start treatment.  I checked out Moffitt in Tampa last week and they have an overflow of patients for the IPI compassionate trial so they are sending everyone to MDAnderson in Orlando.  Dr. Weber at Moffitt suggested I go to MDA in Houston.  I am also being checked for BRAF D & K.  I do not have the 600E.

      My husband and I were very impressed with MDA.  It is an amazing place.  The doc I met with is Patrick Hwu…liked him and his staff.  So after vacation I have to get the ball rolling to start the trial.  I am very concerned about the side effects since I have a very sensitive system and will turn 60 in December. I had 2 treatments of IL-2 but did not tolerate very well due to the blood pressure dropping.  I also had VATS surgery in June to remove 2 spots on my lung.  A couple of days out of the hospital my lung collapsed and I was back in.  I am concerned about care once we are home in case of emergencies.  We live south of Atlanta.  My oncologist is at Emory. which is 40 miles away. 

      What type of side effects do you have and where do you live?  How are you handling the travel back and forth?  Where are you staying in Houston?

      Thanks for your help.

      Sue

       

       

       

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