› Forums › General Melanoma Community › Good news
- This topic has 18 replies, 6 voices, and was last updated 11 years, 2 months ago by
kylez.
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- September 24, 2014 at 1:49 am
Just wanted to say how nice it's been to see so many good news and happy stories the last day or so. I had my local follow-up this afternoon and also recieved a bit of good news: the tumor I had removed last week was completely necrotic- no active tumor at all. Probably explains (at least in part) why I never had any symptoms.
Still don't have the final biopsy and there's still a few questions, but given that bit of info, I'm a bit hopeful that I may not have to return for radiation to the surgical site or, perhaps even the other lesions that were seen on the MRI prior to surgery in other locations. A few more questions still to be answered and hopefully I'll get more answers (and maybe a plan) tomorrow as my local (but very diligent) oncologist tracks down imaging, path reports, etc.
Thrilled that tomorrow morning is my last dose of my steroid taper, and looking forward to resuming PD-1 as soon as they'll let me, and pretty happy that the tumor was actually dead- perhaps there's hope for PD-1 in patients with brain mets after all! We'll see what other info I get and what kind of plan gets proposed, but in the mean time, it really is good to see that others are doing well and getting some good results with their therapies. I think it's good for everyone's morale, at least it is for mine!
Keep fighting everyone- it's worth it and congratulations on all the good news! You all deserve it (and a little bit of a break)!
-Eva
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- September 24, 2014 at 5:15 am
Really great news, Eva! If the tumor doesn't disappear, being fully necrotic is the next best thing! Your good news along with several other folks as you mentioned is wonderful news for all of us. Very interesting that different treatments work for different people. To paraphrase Artie – you just have to find the one that works for you. So glad PD-1 is working for you! Wishing you durable results
Maggie
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- September 24, 2014 at 5:15 am
Really great news, Eva! If the tumor doesn't disappear, being fully necrotic is the next best thing! Your good news along with several other folks as you mentioned is wonderful news for all of us. Very interesting that different treatments work for different people. To paraphrase Artie – you just have to find the one that works for you. So glad PD-1 is working for you! Wishing you durable results
Maggie
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- September 24, 2014 at 5:15 am
Really great news, Eva! If the tumor doesn't disappear, being fully necrotic is the next best thing! Your good news along with several other folks as you mentioned is wonderful news for all of us. Very interesting that different treatments work for different people. To paraphrase Artie – you just have to find the one that works for you. So glad PD-1 is working for you! Wishing you durable results
Maggie
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- September 24, 2014 at 2:04 pm
Another great story! So happy for you Eva! We all know how hard the beast challenges each of us. The more good stories I hear, the more I shed happy tears of relief.
Much health, happiness and laughs to you all,
Laurie
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- September 24, 2014 at 2:04 pm
Another great story! So happy for you Eva! We all know how hard the beast challenges each of us. The more good stories I hear, the more I shed happy tears of relief.
Much health, happiness and laughs to you all,
Laurie
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- September 24, 2014 at 2:04 pm
Another great story! So happy for you Eva! We all know how hard the beast challenges each of us. The more good stories I hear, the more I shed happy tears of relief.
Much health, happiness and laughs to you all,
Laurie
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- September 24, 2014 at 3:18 pm
Sweet. I hope you can get back on the PD1 soon. I got my 7th dose yesterday locally instead of having to drive to Mayo. Which was good cause the radiation i finished Monday has wiped me out a bit but like they told me once they quit messing with me every day I'll start getting better and they are right.
Wonderful news for you.
Artie
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- September 24, 2014 at 3:48 pm
Great news! Really made me feel happy for you and hopeful for us all, so thanks! I have my good days and my not so good days…this one hasn't been so perky and really not for any particular reason. I'm actually pysically feeling quite well. Reading your post brightened my day! Looking forward to my scans next week as well as my fifth infusion of Pembro/Keytruda.
All my best!
Terrie
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- September 24, 2014 at 3:48 pm
Great news! Really made me feel happy for you and hopeful for us all, so thanks! I have my good days and my not so good days…this one hasn't been so perky and really not for any particular reason. I'm actually pysically feeling quite well. Reading your post brightened my day! Looking forward to my scans next week as well as my fifth infusion of Pembro/Keytruda.
All my best!
Terrie
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- September 24, 2014 at 3:48 pm
Great news! Really made me feel happy for you and hopeful for us all, so thanks! I have my good days and my not so good days…this one hasn't been so perky and really not for any particular reason. I'm actually pysically feeling quite well. Reading your post brightened my day! Looking forward to my scans next week as well as my fifth infusion of Pembro/Keytruda.
All my best!
Terrie
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- September 24, 2014 at 3:18 pm
Sweet. I hope you can get back on the PD1 soon. I got my 7th dose yesterday locally instead of having to drive to Mayo. Which was good cause the radiation i finished Monday has wiped me out a bit but like they told me once they quit messing with me every day I'll start getting better and they are right.
Wonderful news for you.
Artie
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- September 24, 2014 at 3:18 pm
Sweet. I hope you can get back on the PD1 soon. I got my 7th dose yesterday locally instead of having to drive to Mayo. Which was good cause the radiation i finished Monday has wiped me out a bit but like they told me once they quit messing with me every day I'll start getting better and they are right.
Wonderful news for you.
Artie
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- September 25, 2014 at 4:04 am
That does sound like the kind of thing you'd like you're neurosurgeon to tell you!
Off the steroids now… yippee!
Fingers crossed that the good news continues.
Oh, and I had a post-craniotomy hospital roommate experience kind of like yours. Who cares if I can keep my balance. Let me out!!! AMA/against medical advice or whatever!!!
– Kyle
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- September 25, 2014 at 4:04 am
That does sound like the kind of thing you'd like you're neurosurgeon to tell you!
Off the steroids now… yippee!
Fingers crossed that the good news continues.
Oh, and I had a post-craniotomy hospital roommate experience kind of like yours. Who cares if I can keep my balance. Let me out!!! AMA/against medical advice or whatever!!!
– Kyle
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- September 25, 2014 at 4:04 am
That does sound like the kind of thing you'd like you're neurosurgeon to tell you!
Off the steroids now… yippee!
Fingers crossed that the good news continues.
Oh, and I had a post-craniotomy hospital roommate experience kind of like yours. Who cares if I can keep my balance. Let me out!!! AMA/against medical advice or whatever!!!
– Kyle
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