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Re: staging Qs to ask ONC

Forums General Melanoma Community staging Qs to ask ONC Re: staging Qs to ask ONC

    Janner
    Participant

    Aren't you the warrior that they were questioning the diagnosis?  Melanoma versus something else?  Truthfully, at this time I think you need to learn the diagnosis and NOT worry about BRAF and DNA testing and other things.  You want to know what you are dealing with first.  THEN go from there.  BRAF and other treatments are typically more for stage IV warriors.  Mitosis is more for people who have a primary lesion.  You need to find out the diagnosis.  Then find out if it is seen elsewhere in your body.  THEN you'll have enough information to start asking intelligent questions.  Right now, you don't.  It really does make sense to have the staging and diagnosis completed before you take the next step.  Clinical trials and other treatments depend upon staging so that part must be completed.  When you have all the particulars of your current status, you can post them and then people can make comments and recommendations based on that info.  Until then, we can't answer with much certainty about anything.

    Best wishes,

    Janner

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