Video on How Anti-PD-1 therapy works with Imumne System
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Video on How Anti-PD-1 therapy works with Imumne System

› Forums › General Melanoma Community › Video on How Anti-PD-1 therapy works with Imumne System

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      • October 6, 2011 at 5:11 pm
      momof2kids
      Participant

      Thanks for posting.

      Anyone have any clue how far from FDA approval these treatments are, like years, or what?

      I'm just anxious to have other options out there that will possibly work, don't want to have to wait 5 years for it to be approved, etc.

       

      Thanks again!

        • October 6, 2011 at 5:35 pm
        jim Breitfeller
        Participant

        This drug is in the Phase1  protocol for Clinical trials.Phase I trials are the first stage of testing in human subjects. Normally, a small (20-100) group of healthy volunteers will be selected. This phase includes trials designed to assess the safety (pharmacovigilance), tolerability, pharmacokinetics, and pharmacodynamics of a drug. These trials are often conducted in an inpatient clinic, where the subject can be observed by full-time staff. The subject who receives the drug is usually observed until several half-lives of the drug have passed. Phase I trials also normally include dose-ranging, also called dose escalation, studies so that the appropriate dose for therapeutic use can be found.

        It  is years away from being FDA. But that doesn't mean the Melanoma patients can't take advantage of the drug. You can participate in their clinical trials. Beware of their acceptance criteria. Plan ahead. If you want to do Anti-PD-1 therapy, you might want to hold off from doing Yervoy.  To make it down the yellow brick road to the City of OZ (NED) you will have to make choices. These choices can make a differenence between  progression and regression. Choose wisely with the help of your Medical team.

        best regards,

        Jimmy B

        • October 6, 2011 at 5:35 pm
        jim Breitfeller
        Participant

        This drug is in the Phase1  protocol for Clinical trials.Phase I trials are the first stage of testing in human subjects. Normally, a small (20-100) group of healthy volunteers will be selected. This phase includes trials designed to assess the safety (pharmacovigilance), tolerability, pharmacokinetics, and pharmacodynamics of a drug. These trials are often conducted in an inpatient clinic, where the subject can be observed by full-time staff. The subject who receives the drug is usually observed until several half-lives of the drug have passed. Phase I trials also normally include dose-ranging, also called dose escalation, studies so that the appropriate dose for therapeutic use can be found.

        It  is years away from being FDA. But that doesn't mean the Melanoma patients can't take advantage of the drug. You can participate in their clinical trials. Beware of their acceptance criteria. Plan ahead. If you want to do Anti-PD-1 therapy, you might want to hold off from doing Yervoy.  To make it down the yellow brick road to the City of OZ (NED) you will have to make choices. These choices can make a differenence between  progression and regression. Choose wisely with the help of your Medical team.

        best regards,

        Jimmy B

        • October 6, 2011 at 5:35 pm
        jim Breitfeller
        Participant

        This drug is in the Phase1  protocol for Clinical trials.Phase I trials are the first stage of testing in human subjects. Normally, a small (20-100) group of healthy volunteers will be selected. This phase includes trials designed to assess the safety (pharmacovigilance), tolerability, pharmacokinetics, and pharmacodynamics of a drug. These trials are often conducted in an inpatient clinic, where the subject can be observed by full-time staff. The subject who receives the drug is usually observed until several half-lives of the drug have passed. Phase I trials also normally include dose-ranging, also called dose escalation, studies so that the appropriate dose for therapeutic use can be found.

        It  is years away from being FDA. But that doesn't mean the Melanoma patients can't take advantage of the drug. You can participate in their clinical trials. Beware of their acceptance criteria. Plan ahead. If you want to do Anti-PD-1 therapy, you might want to hold off from doing Yervoy.  To make it down the yellow brick road to the City of OZ (NED) you will have to make choices. These choices can make a differenence between  progression and regression. Choose wisely with the help of your Medical team.

        best regards,

        Jimmy B

      • October 6, 2011 at 5:11 pm
      momof2kids
      Participant

      Thanks for posting.

      Anyone have any clue how far from FDA approval these treatments are, like years, or what?

      I'm just anxious to have other options out there that will possibly work, don't want to have to wait 5 years for it to be approved, etc.

       

      Thanks again!

      • October 6, 2011 at 5:11 pm
      momof2kids
      Participant

      Thanks for posting.

      Anyone have any clue how far from FDA approval these treatments are, like years, or what?

      I'm just anxious to have other options out there that will possibly work, don't want to have to wait 5 years for it to be approved, etc.

       

      Thanks again!

      • October 6, 2011 at 7:10 pm
      Cooper
      Participant

      Correction Jimmy:  CT-O11 is in fact the Anti Pd1 molecule made by Curetech.  It is not the generic name for these products.  Many companies are making this therapy.

        • October 6, 2011 at 7:50 pm
        jim Breitfeller
        Participant

        Cooper, You are correct. I wasn't implying that all anti-PD-1 products have this (CT-011) name.  I was trying to get across that when they talked about CT-011 in the video, you must think of it as Anti-PD-1.

        Thanks for the clarification

         

        Jimmy B

        • October 6, 2011 at 7:50 pm
        jim Breitfeller
        Participant

        Cooper, You are correct. I wasn't implying that all anti-PD-1 products have this (CT-011) name.  I was trying to get across that when they talked about CT-011 in the video, you must think of it as Anti-PD-1.

        Thanks for the clarification

         

        Jimmy B

        • October 6, 2011 at 7:50 pm
        jim Breitfeller
        Participant

        Cooper, You are correct. I wasn't implying that all anti-PD-1 products have this (CT-011) name.  I was trying to get across that when they talked about CT-011 in the video, you must think of it as Anti-PD-1.

        Thanks for the clarification

         

        Jimmy B

      • October 6, 2011 at 7:10 pm
      Cooper
      Participant

      Correction Jimmy:  CT-O11 is in fact the Anti Pd1 molecule made by Curetech.  It is not the generic name for these products.  Many companies are making this therapy.

      • October 6, 2011 at 7:10 pm
      Cooper
      Participant

      Correction Jimmy:  CT-O11 is in fact the Anti Pd1 molecule made by Curetech.  It is not the generic name for these products.  Many companies are making this therapy.

      • October 7, 2011 at 9:12 pm
      rbruce
      Participant

      Jim,

      You have been very helpful in pointing out relevant technologies for Melanoma.  I was wondering if you wouldn't mind posting something in your profile about yourself so we can better understand your motivation here.  Are you a melanoma survivor, caretaker or what?  I don't want to be rude, but this is such a personal journey, we'd like to know more about you.  Thanks,  Robert

        • October 7, 2011 at 9:24 pm
        Cooper
        Participant

        I agree Robert, I would like to know more about Jim, his profile page is blank.  What is his medical background to be giving this advice. Is he just a well read person or does he have a special medical degree.  It is fairly easy to post a lot of jargon but to explain it for the everyday person takes a real doctor or nurse.

        • October 7, 2011 at 11:05 pm
        benp
        Participant

        I disagree, and I find this rude. It does not seem to me that any medical advice is being given, rather some information is being presented. If most of it goes over your head (as it does mine), then so be it. It's an avenue for further education. Reading  some of the posts here on the biologiical/clinical side of things has helped me hugely in my own research and journey.

        It occurs to me that Jim's posts are due to his passion with educationing people, and we're very lucky to have that. It would be a terrible thing if people such as Jim stopped posting here due to people not appreciating the effort.

        Thanks, 

        Ben.

        • October 8, 2011 at 4:06 pm
        rbruce
        Participant

        Ben,

        Not sure why you got so riled up. This forum has been such an open and honest place to talk, I think my question was entirely legitimate, apparently Jimmy does too as he replied with a very nice message to my post and I appreciate him even more now that he has done so.  I am a stage IV patient trying hard to understand this disease and play an active role in saving my life and other's.  I too, made a pact with the Lord that I would help find therapies and a cure for the beast.  I met with my Oncologist yesterday and presented some of the stuff Jimmy has posted and it was extemely helpful in determining my next therapy. 

        I plan on posting later asking people why they would post as anonymous as I am really curious why.  I hope that doesn't offend you.

        Robert

        • October 8, 2011 at 4:06 pm
        rbruce
        Participant

        Ben,

        Not sure why you got so riled up. This forum has been such an open and honest place to talk, I think my question was entirely legitimate, apparently Jimmy does too as he replied with a very nice message to my post and I appreciate him even more now that he has done so.  I am a stage IV patient trying hard to understand this disease and play an active role in saving my life and other's.  I too, made a pact with the Lord that I would help find therapies and a cure for the beast.  I met with my Oncologist yesterday and presented some of the stuff Jimmy has posted and it was extemely helpful in determining my next therapy. 

        I plan on posting later asking people why they would post as anonymous as I am really curious why.  I hope that doesn't offend you.

        Robert

        • October 8, 2011 at 4:06 pm
        rbruce
        Participant

        Ben,

        Not sure why you got so riled up. This forum has been such an open and honest place to talk, I think my question was entirely legitimate, apparently Jimmy does too as he replied with a very nice message to my post and I appreciate him even more now that he has done so.  I am a stage IV patient trying hard to understand this disease and play an active role in saving my life and other's.  I too, made a pact with the Lord that I would help find therapies and a cure for the beast.  I met with my Oncologist yesterday and presented some of the stuff Jimmy has posted and it was extemely helpful in determining my next therapy. 

        I plan on posting later asking people why they would post as anonymous as I am really curious why.  I hope that doesn't offend you.

        Robert

        • October 8, 2011 at 6:24 pm
        killmel
        Participant

        Robert,

        I post "anon" because I am shy & really not sure if I express myself clearly. I think maybe my questions are dumb. I am not trying to deceive anyone. Why does this bother you? I just wanted to go to a safe place & ask a question.

        I think Jimmy is wondeful to help. I think that if you question his medical expertise then you should not take it. I think it was rude you asking him to qualify his ability to post medical data.

        I think that Jimmy replied to your request because he is a good guy and obviously if he wanted you to know his profile he would have posted his profile. Now, you made Jimmy post his private information to appease you.

        Robert, interesting that your ONC found Jimmy data helpful. You would have thought your ONC would already know Jimmy's info/date. I guess that is telling about your ONC's experience vs Jimmy's knowledge.??

        I hope your next theraphy proves successful for you. Please keep us posted. We are a family here even if we post "anonymous"

        Since Robert is questioning motives of people posting "anonymous"  I, for one, will stop posting on MPIP if this bothers others. Please let me know.

        ANON.

         

        • October 8, 2011 at 6:24 pm
        killmel
        Participant

        Robert,

        I post "anon" because I am shy & really not sure if I express myself clearly. I think maybe my questions are dumb. I am not trying to deceive anyone. Why does this bother you? I just wanted to go to a safe place & ask a question.

        I think Jimmy is wondeful to help. I think that if you question his medical expertise then you should not take it. I think it was rude you asking him to qualify his ability to post medical data.

        I think that Jimmy replied to your request because he is a good guy and obviously if he wanted you to know his profile he would have posted his profile. Now, you made Jimmy post his private information to appease you.

        Robert, interesting that your ONC found Jimmy data helpful. You would have thought your ONC would already know Jimmy's info/date. I guess that is telling about your ONC's experience vs Jimmy's knowledge.??

        I hope your next theraphy proves successful for you. Please keep us posted. We are a family here even if we post "anonymous"

        Since Robert is questioning motives of people posting "anonymous"  I, for one, will stop posting on MPIP if this bothers others. Please let me know.

        ANON.

         

        • October 8, 2011 at 6:24 pm
        killmel
        Participant

        Robert,

        I post "anon" because I am shy & really not sure if I express myself clearly. I think maybe my questions are dumb. I am not trying to deceive anyone. Why does this bother you? I just wanted to go to a safe place & ask a question.

        I think Jimmy is wondeful to help. I think that if you question his medical expertise then you should not take it. I think it was rude you asking him to qualify his ability to post medical data.

        I think that Jimmy replied to your request because he is a good guy and obviously if he wanted you to know his profile he would have posted his profile. Now, you made Jimmy post his private information to appease you.

        Robert, interesting that your ONC found Jimmy data helpful. You would have thought your ONC would already know Jimmy's info/date. I guess that is telling about your ONC's experience vs Jimmy's knowledge.??

        I hope your next theraphy proves successful for you. Please keep us posted. We are a family here even if we post "anonymous"

        Since Robert is questioning motives of people posting "anonymous"  I, for one, will stop posting on MPIP if this bothers others. Please let me know.

        ANON.

         

        • October 9, 2011 at 12:09 am
        benp
        Participant
        Hi Robert,

        I actually agree with you. It is not your post which I personally found rude. It was the tone of the post following. Sorry for the confusion.

        Ben.

        • October 9, 2011 at 12:09 am
        benp
        Participant
        Hi Robert,

        I actually agree with you. It is not your post which I personally found rude. It was the tone of the post following. Sorry for the confusion.

        Ben.

        • October 9, 2011 at 12:09 am
        benp
        Participant
        Hi Robert,

        I actually agree with you. It is not your post which I personally found rude. It was the tone of the post following. Sorry for the confusion.

        Ben.

        • October 7, 2011 at 11:05 pm
        benp
        Participant

        I disagree, and I find this rude. It does not seem to me that any medical advice is being given, rather some information is being presented. If most of it goes over your head (as it does mine), then so be it. It's an avenue for further education. Reading  some of the posts here on the biologiical/clinical side of things has helped me hugely in my own research and journey.

        It occurs to me that Jim's posts are due to his passion with educationing people, and we're very lucky to have that. It would be a terrible thing if people such as Jim stopped posting here due to people not appreciating the effort.

        Thanks, 

        Ben.

        • October 7, 2011 at 11:05 pm
        benp
        Participant

        I disagree, and I find this rude. It does not seem to me that any medical advice is being given, rather some information is being presented. If most of it goes over your head (as it does mine), then so be it. It's an avenue for further education. Reading  some of the posts here on the biologiical/clinical side of things has helped me hugely in my own research and journey.

        It occurs to me that Jim's posts are due to his passion with educationing people, and we're very lucky to have that. It would be a terrible thing if people such as Jim stopped posting here due to people not appreciating the effort.

        Thanks, 

        Ben.

        • October 7, 2011 at 9:24 pm
        Cooper
        Participant

        I agree Robert, I would like to know more about Jim, his profile page is blank.  What is his medical background to be giving this advice. Is he just a well read person or does he have a special medical degree.  It is fairly easy to post a lot of jargon but to explain it for the everyday person takes a real doctor or nurse.

        • October 7, 2011 at 9:24 pm
        Cooper
        Participant

        I agree Robert, I would like to know more about Jim, his profile page is blank.  What is his medical background to be giving this advice. Is he just a well read person or does he have a special medical degree.  It is fairly easy to post a lot of jargon but to explain it for the everyday person takes a real doctor or nurse.

        • October 7, 2011 at 10:36 pm
        jim Breitfeller
        Participant

        Robert,

        I haven't posted my profile here on MPIP because I am somewhat shy and this isn't abouT ME. It is about the patients coming to this site looking answers/ gudiance. 

        This what I am A Stage IV Survivor that made a pack with the man upstairs. I said, " If I make though to the other side I would dedicate myself to help find a cure/stabilzation to this terible disease".  I am Keeping my promise as long as I stay healthy. I am here to help educate the patients here, so they can make an educate decision on their therapy.

        It can be overwhelming. How do I know? I was there myself  in 2005. I used my research skills to my advantage.

        I documented my journey in a paper I call " Melanoma and the Magic Bullet (Monoclonal Antibodies) My journey start on page 16.

        Melanoma and the Magic Bullet (Monoclonal Antibodies

        Once I was well enough 2008, I started a website called Melanoma Missionary

        If you like Science, and the science of the immune system as it pertains to Melanoma and treatments, this is the place to be.

        As for being a doctor, No  I am not a doctor but, I have spent the last 4 years living and breathing The science of melanoma and the therapies. I have taken online (CME)  continuing Education courses for melanoma and translational sciencene bout the immune system and activation. Sat though endless powerpoint presentations and on seminars.  I have conversed with Doctors/Researchers from around the world. I don't have the degree, but I do have the passion.

        I am a firm believer that  with the right drugs and sequence, the Immune system can eradicate cancer.

        The best way we have now to combat this disease as a stage IV patient is :

        1)Targeted therapy ( BRAF+MEK) if  BRAF positive

        2) Anti-CTLA-4 (Yervoy) or combo

        3) Interluekin 2 or combo

        4)Clinical trials  (Yervoy + PD-1), (BRAF + Yervoy) ,PD-1, PD-L1

        With Brain Mets… It is a whole other can of worms.

         

        I hope this helps

        I am here to help, that is it you want it.

        Jimmy B

         

        • October 7, 2011 at 11:29 pm
        mombase
        Participant

        You rock, Jimmy B!! yes  Even though I have a very hard time with the science behind the treatments, I appreciate that you keep putting the information out there. I have a special label in Gmail to move all of the emails that I have received with you as the author, and I plan to read them one by one as slowly as it takes for me to start getting a grip on those timelines.  I have plenty of time to do it…it's not like I am going anywhere!! 🙂

        Cristy, Stage IV

        • October 7, 2011 at 11:29 pm
        mombase
        Participant

        You rock, Jimmy B!! yes  Even though I have a very hard time with the science behind the treatments, I appreciate that you keep putting the information out there. I have a special label in Gmail to move all of the emails that I have received with you as the author, and I plan to read them one by one as slowly as it takes for me to start getting a grip on those timelines.  I have plenty of time to do it…it's not like I am going anywhere!! 🙂

        Cristy, Stage IV

        • October 7, 2011 at 11:29 pm
        mombase
        Participant

        You rock, Jimmy B!! yes  Even though I have a very hard time with the science behind the treatments, I appreciate that you keep putting the information out there. I have a special label in Gmail to move all of the emails that I have received with you as the author, and I plan to read them one by one as slowly as it takes for me to start getting a grip on those timelines.  I have plenty of time to do it…it's not like I am going anywhere!! 🙂

        Cristy, Stage IV

        • October 8, 2011 at 4:11 pm
        rbruce
        Participant

        Thank you Jimmy B so much for your thoughtful reply.  I have forwarded your research to so many others, including my doctors and thought that I should know a bit more about you.  I certainly didn't intend to cause a problem on the board and your reply shows the gentleman you are.  Thank you and I look forward to watching your posts closely for your research and help.  God Bless, Robert

        • October 8, 2011 at 4:11 pm
        rbruce
        Participant

        Thank you Jimmy B so much for your thoughtful reply.  I have forwarded your research to so many others, including my doctors and thought that I should know a bit more about you.  I certainly didn't intend to cause a problem on the board and your reply shows the gentleman you are.  Thank you and I look forward to watching your posts closely for your research and help.  God Bless, Robert

        • October 8, 2011 at 4:11 pm
        rbruce
        Participant

        Thank you Jimmy B so much for your thoughtful reply.  I have forwarded your research to so many others, including my doctors and thought that I should know a bit more about you.  I certainly didn't intend to cause a problem on the board and your reply shows the gentleman you are.  Thank you and I look forward to watching your posts closely for your research and help.  God Bless, Robert

        • October 7, 2011 at 10:36 pm
        jim Breitfeller
        Participant

        Robert,

        I haven't posted my profile here on MPIP because I am somewhat shy and this isn't abouT ME. It is about the patients coming to this site looking answers/ gudiance. 

        This what I am A Stage IV Survivor that made a pack with the man upstairs. I said, " If I make though to the other side I would dedicate myself to help find a cure/stabilzation to this terible disease".  I am Keeping my promise as long as I stay healthy. I am here to help educate the patients here, so they can make an educate decision on their therapy.

        It can be overwhelming. How do I know? I was there myself  in 2005. I used my research skills to my advantage.

        I documented my journey in a paper I call " Melanoma and the Magic Bullet (Monoclonal Antibodies) My journey start on page 16.

        Melanoma and the Magic Bullet (Monoclonal Antibodies

        Once I was well enough 2008, I started a website called Melanoma Missionary

        If you like Science, and the science of the immune system as it pertains to Melanoma and treatments, this is the place to be.

        As for being a doctor, No  I am not a doctor but, I have spent the last 4 years living and breathing The science of melanoma and the therapies. I have taken online (CME)  continuing Education courses for melanoma and translational sciencene bout the immune system and activation. Sat though endless powerpoint presentations and on seminars.  I have conversed with Doctors/Researchers from around the world. I don't have the degree, but I do have the passion.

        I am a firm believer that  with the right drugs and sequence, the Immune system can eradicate cancer.

        The best way we have now to combat this disease as a stage IV patient is :

        1)Targeted therapy ( BRAF+MEK) if  BRAF positive

        2) Anti-CTLA-4 (Yervoy) or combo

        3) Interluekin 2 or combo

        4)Clinical trials  (Yervoy + PD-1), (BRAF + Yervoy) ,PD-1, PD-L1

        With Brain Mets… It is a whole other can of worms.

         

        I hope this helps

        I am here to help, that is it you want it.

        Jimmy B

         

        • October 7, 2011 at 10:36 pm
        jim Breitfeller
        Participant

        Robert,

        I haven't posted my profile here on MPIP because I am somewhat shy and this isn't abouT ME. It is about the patients coming to this site looking answers/ gudiance. 

        This what I am A Stage IV Survivor that made a pack with the man upstairs. I said, " If I make though to the other side I would dedicate myself to help find a cure/stabilzation to this terible disease".  I am Keeping my promise as long as I stay healthy. I am here to help educate the patients here, so they can make an educate decision on their therapy.

        It can be overwhelming. How do I know? I was there myself  in 2005. I used my research skills to my advantage.

        I documented my journey in a paper I call " Melanoma and the Magic Bullet (Monoclonal Antibodies) My journey start on page 16.

        Melanoma and the Magic Bullet (Monoclonal Antibodies

        Once I was well enough 2008, I started a website called Melanoma Missionary

        If you like Science, and the science of the immune system as it pertains to Melanoma and treatments, this is the place to be.

        As for being a doctor, No  I am not a doctor but, I have spent the last 4 years living and breathing The science of melanoma and the therapies. I have taken online (CME)  continuing Education courses for melanoma and translational sciencene bout the immune system and activation. Sat though endless powerpoint presentations and on seminars.  I have conversed with Doctors/Researchers from around the world. I don't have the degree, but I do have the passion.

        I am a firm believer that  with the right drugs and sequence, the Immune system can eradicate cancer.

        The best way we have now to combat this disease as a stage IV patient is :

        1)Targeted therapy ( BRAF+MEK) if  BRAF positive

        2) Anti-CTLA-4 (Yervoy) or combo

        3) Interluekin 2 or combo

        4)Clinical trials  (Yervoy + PD-1), (BRAF + Yervoy) ,PD-1, PD-L1

        With Brain Mets… It is a whole other can of worms.

         

        I hope this helps

        I am here to help, that is it you want it.

        Jimmy B

         

      • October 7, 2011 at 9:12 pm
      rbruce
      Participant

      Jim,

      You have been very helpful in pointing out relevant technologies for Melanoma.  I was wondering if you wouldn't mind posting something in your profile about yourself so we can better understand your motivation here.  Are you a melanoma survivor, caretaker or what?  I don't want to be rude, but this is such a personal journey, we'd like to know more about you.  Thanks,  Robert

      • October 7, 2011 at 9:12 pm
      rbruce
      Participant

      Jim,

      You have been very helpful in pointing out relevant technologies for Melanoma.  I was wondering if you wouldn't mind posting something in your profile about yourself so we can better understand your motivation here.  Are you a melanoma survivor, caretaker or what?  I don't want to be rude, but this is such a personal journey, we'd like to know more about you.  Thanks,  Robert

      • October 7, 2011 at 11:23 pm
      justlittleoleme
      Participant
      Jimmy b,
      Thank you for your dedication to learning more about this beast melanoma. I have found that patients and their families have to be their own advocates. People like you, willing to share your knowledge, help us become more educated. Thank you for all you are doing and sharing. Your work is appreciated.
      Barb
      • October 7, 2011 at 11:23 pm
      justlittleoleme
      Participant
      Jimmy b,
      Thank you for your dedication to learning more about this beast melanoma. I have found that patients and their families have to be their own advocates. People like you, willing to share your knowledge, help us become more educated. Thank you for all you are doing and sharing. Your work is appreciated.
      Barb
      • October 7, 2011 at 11:23 pm
      justlittleoleme
      Participant
      Jimmy b,
      Thank you for your dedication to learning more about this beast melanoma. I have found that patients and their families have to be their own advocates. People like you, willing to share your knowledge, help us become more educated. Thank you for all you are doing and sharing. Your work is appreciated.
      Barb
      • October 8, 2011 at 3:42 am
      Bubbles
      Participant
      For more info on anti-PD1 check out the following-
      The Melanoma International Foundation website and then the post “anti-PD1 clinical trial update” by Jonathan on 10/4/11

      And – the anti- PD1 webinar given by Sznol (a leading MD expert on melanoma at Yale) at: http://www.melanomaintl.org

      I think each patient needs to learn about the options available and then make the best decision they can for themselves.

      The best to all. Celeste, CPNP, RN, melanoma patient since 2003, currently in anti-PD1 trial at Moffitt in Tampa

      • October 8, 2011 at 3:42 am
      Bubbles
      Participant
      For more info on anti-PD1 check out the following-
      The Melanoma International Foundation website and then the post “anti-PD1 clinical trial update” by Jonathan on 10/4/11

      And – the anti- PD1 webinar given by Sznol (a leading MD expert on melanoma at Yale) at: http://www.melanomaintl.org

      I think each patient needs to learn about the options available and then make the best decision they can for themselves.

      The best to all. Celeste, CPNP, RN, melanoma patient since 2003, currently in anti-PD1 trial at Moffitt in Tampa

      • October 8, 2011 at 3:42 am
      Bubbles
      Participant
      For more info on anti-PD1 check out the following-
      The Melanoma International Foundation website and then the post “anti-PD1 clinical trial update” by Jonathan on 10/4/11

      And – the anti- PD1 webinar given by Sznol (a leading MD expert on melanoma at Yale) at: http://www.melanomaintl.org

      I think each patient needs to learn about the options available and then make the best decision they can for themselves.

      The best to all. Celeste, CPNP, RN, melanoma patient since 2003, currently in anti-PD1 trial at Moffitt in Tampa

        • October 8, 2011 at 7:47 pm
        Cooper
        Participant

        Bubbles you are right! The webinar is great and it is reassuring to hear the information straight from the horses mouth, the docs who have been working with it.  I thought the doc did a great job as well as the patient questions and answers at the end were great too.  I'm stage 4 and this may be my only option left.  I take my advice from those who have studied the drug in research with patients.

        • October 8, 2011 at 7:47 pm
        Cooper
        Participant

        Bubbles you are right! The webinar is great and it is reassuring to hear the information straight from the horses mouth, the docs who have been working with it.  I thought the doc did a great job as well as the patient questions and answers at the end were great too.  I'm stage 4 and this may be my only option left.  I take my advice from those who have studied the drug in research with patients.

        • October 8, 2011 at 7:47 pm
        Cooper
        Participant

        Bubbles you are right! The webinar is great and it is reassuring to hear the information straight from the horses mouth, the docs who have been working with it.  I thought the doc did a great job as well as the patient questions and answers at the end were great too.  I'm stage 4 and this may be my only option left.  I take my advice from those who have studied the drug in research with patients.

        • October 8, 2011 at 9:13 pm
        Cooper
        Participant

        Jimmy,

         Although you may have good intentions, your continuing ed certificate doesn't take the place of the years of training medical school provides.  Therefore maybe you need a little disclaimer after you tell folks to not listen to their docs.  Yes, docs can be wrong, and so can you be wrong.  This disease takes a true genius to figure it all out and even then they can be wrong.

        • October 8, 2011 at 9:13 pm
        Cooper
        Participant

        Jimmy,

         Although you may have good intentions, your continuing ed certificate doesn't take the place of the years of training medical school provides.  Therefore maybe you need a little disclaimer after you tell folks to not listen to their docs.  Yes, docs can be wrong, and so can you be wrong.  This disease takes a true genius to figure it all out and even then they can be wrong.

        • October 8, 2011 at 9:13 pm
        Cooper
        Participant

        Jimmy,

         Although you may have good intentions, your continuing ed certificate doesn't take the place of the years of training medical school provides.  Therefore maybe you need a little disclaimer after you tell folks to not listen to their docs.  Yes, docs can be wrong, and so can you be wrong.  This disease takes a true genius to figure it all out and even then they can be wrong.

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