It’s so important to report side-effects
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

It’s so important to report side-effects

› Forums › General Melanoma Community › It’s so important to report side-effects

  • Post
    • June 10, 2011 at 9:43 pm
    NYKaren
    Participant

    Hi everyone,

    As I've mentioned, I'm on Yervoy, 2nd infusion scheduled for June 16th.  Starting last Friday, I started having diarrhea, but it was usually controlled with Imodium, and I thought it was too early for side effects.

    Hi everyone,

    As I've mentioned, I'm on Yervoy, 2nd infusion scheduled for June 16th.  Starting last Friday, I started having diarrhea, but it was usually controlled with Imodium, and I thought it was too early for side effects.

    On Wednesday, it was really bad, so I called Dr. Wolchuk.  He immediately put me on Entocort EC, a steroid that works in the gut.  Immediately after taking it, I felt better.  I called Dr. W. to report in today, and he said to stay on it and report back Monday.  I still have a small amount of discomfort in the abdominal area, but that's about it.  He also said that if I have to remain on the Entocort, I can still have my next infusion.  WHEW, I was really worried about that.

    Apparently, diarrhea is one side effect that can start early and one that they need to monitor closely.  (I guess they have to monitor them all closely.)

    Just thought I'd share my experience in case it helps someone else.

    Take care,

    Karen

Viewing 5 reply threads
  • Replies
      • June 10, 2011 at 9:45 pm
      NYKaren
      Participant

      oh yeah, forgot to share that I have to stay on a bland diet, and boy do i feel the difference when I don't.  So it's low-fat cottege cheese, yogurt and baked chicken for me!

      • June 10, 2011 at 9:45 pm
      NYKaren
      Participant

      oh yeah, forgot to share that I have to stay on a bland diet, and boy do i feel the difference when I don't.  So it's low-fat cottege cheese, yogurt and baked chicken for me!

      • June 10, 2011 at 9:58 pm
      Carol Taylor
      Participant

      Karen,

      They don't want you getting dehydrated. I hope you get good results from Yervoy and that your taste buds adapt to your diet. Maybe you can bake the chicken in the yogurt to spice things up a little. Bland is good if it works!

      All the best in this. Lord, in Your mercy, watch over Karen. Thank You. Amen.

      Grace and peace,

      Carol

      • June 10, 2011 at 9:58 pm
      Carol Taylor
      Participant

      Karen,

      They don't want you getting dehydrated. I hope you get good results from Yervoy and that your taste buds adapt to your diet. Maybe you can bake the chicken in the yogurt to spice things up a little. Bland is good if it works!

      All the best in this. Lord, in Your mercy, watch over Karen. Thank You. Amen.

      Grace and peace,

      Carol

        • June 10, 2011 at 10:16 pm
        NYKaren
        Participant

        Thank you for your prayer, Carol.

        We keep  kosher (among other things, no mixing of meat and dairy–so now I'm bland and kosher) so I can't cook the chicken in the yogurt.

        And you're absolutely right about dehydration, I have to drink tons, even on the medication.

        have a good weekend,

        karen

        • June 10, 2011 at 10:16 pm
        NYKaren
        Participant

        Thank you for your prayer, Carol.

        We keep  kosher (among other things, no mixing of meat and dairy–so now I'm bland and kosher) so I can't cook the chicken in the yogurt.

        And you're absolutely right about dehydration, I have to drink tons, even on the medication.

        have a good weekend,

        karen

        • June 10, 2011 at 10:27 pm
        Carol Taylor
        Participant

        Hmmm…that would be something of a no-no wouldn't it? You'd think the Foodnetwork would have a show about Seasonless Cooking with special episodes for special cooking needs beyond bland like keeping kosher. I hope you're a whiz in the kitchen, sounds like you've got your work cut out for you!

        You have a great weekend too.

        Grace and peace,

        Carol

        • June 10, 2011 at 10:27 pm
        Carol Taylor
        Participant

        Hmmm…that would be something of a no-no wouldn't it? You'd think the Foodnetwork would have a show about Seasonless Cooking with special episodes for special cooking needs beyond bland like keeping kosher. I hope you're a whiz in the kitchen, sounds like you've got your work cut out for you!

        You have a great weekend too.

        Grace and peace,

        Carol

      • June 10, 2011 at 11:03 pm
      lhaley
      Participant

      Karen,

      Roast your own turkey. Buy a meat slicer and slice your own lunchmeat. You'll be able to control the seasonings and keep kosher. You can also do his with a roast. 

      One of my friends from MPIP a few years ago was on Ippi when on a trial. She found she could eat scrambled eggs with no seasoning. Eggs,rice and turkey were the staples of her diet. 

      Glad you can stay on the drug.

      Linda

      • June 10, 2011 at 11:03 pm
      lhaley
      Participant

      Karen,

      Roast your own turkey. Buy a meat slicer and slice your own lunchmeat. You'll be able to control the seasonings and keep kosher. You can also do his with a roast. 

      One of my friends from MPIP a few years ago was on Ippi when on a trial. She found she could eat scrambled eggs with no seasoning. Eggs,rice and turkey were the staples of her diet. 

      Glad you can stay on the drug.

      Linda

        • June 10, 2011 at 11:15 pm
        NYKaren
        Participant

        Linda, that's a great idea about the slicer.  I will definately look into it.

        Yes, scrambled eggs are my friend.

        Thank you.

        • June 10, 2011 at 11:15 pm
        NYKaren
        Participant

        Linda, that's a great idea about the slicer.  I will definately look into it.

        Yes, scrambled eggs are my friend.

        Thank you.

Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics