Lucky #13 of Pembro in the books!
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Lucky #13 of Pembro in the books!

› Forums › General Melanoma Community › Lucky #13 of Pembro in the books!

  • Post
    • June 27, 2018 at 11:24 pm
    TexMelanomex
    Participant

    Hey Warriors, 

    I completed lucky #13 of Pembro treatments and true to form some thyroid issues emerged on the labs..nothing that requires correction yet, hopefully just a blip following a long B-day weekend in Vegas, but its my first anomally on labs since starting all of this. 

    I hope this finds you all fighting hard, living harder, and warrioring on!

    Tex

Viewing 2 reply threads
  • Replies
      • June 28, 2018 at 2:55 am
      Coragirl
      Participant

      Hi, I have been wondering how you are doing. Good to hear you are well. Happy Belated Birthday.My husband has his third infusion of Opdivo next Friday and then we are going on Vacation the next day. He has been feeling good and he sleeps really well, I hope he doesn't develop any side effects while we are away, I am a little nervous about that. His doctor said he should be just fine and we should enjoy ouselves. Keep taking care of yourself.

        • June 29, 2018 at 4:03 am
        TexMelanomex
        Participant

        Thanks Amie! I completely agree with your doc! Get out there and live and have fun! Have a great vacation and enjoy!! 

      • June 28, 2018 at 11:40 pm
      BillB
      Participant

      Sounds good.  A little ahead of you, #16 for me tomorrow. How are the side effects?

      Bill

        • June 29, 2018 at 4:01 am
        TexMelanomex
        Participant

        Hi Bill, 

        So far the side effects have been very manageable. I still get fatigue for a few days after treatment. Starting at treatment 11 I started to notice some mild joint pain but nothing terrible. Aside from the recent fluctuation in thyroid, nothing serious at all. How about with you?

         

        • June 29, 2018 at 3:56 pm
        BillB
        Participant

        Hi Tex, #16 is in the books. Side effects seemed to increase around infusion 7. Fatigue and joint pain, all manageable. Sometimes hard to distinguish between damage inflicted upon myself in younger days and being older, or both acting together. Have your doctors at MDA discussed how long they will continue treatment?

        bill

        • June 29, 2018 at 8:32 pm
        TexMelanomex
        Participant

        I agree Bill, sometimes I wonder if its my younger days as a paratrooper and hard knocks, the Pembro, or likely a combination of the two? My team says they are looking at going the "full two years" on this as long as I'm tolerating it. How abour your team, are they saying two years also?

         

        • June 30, 2018 at 12:44 pm
        BillB
        Participant

        Hi Tex, they feel I can stop now (actually they believe I could’ve stopped at the end of January). It will be one year the beginning of August since I started treatment, and beginnng of October since NED. I’m contemplating the end of the year, but might continue. Very hard decision to make.

        the doctors feel since I had such a quick complete response the benefit of the treatment is complete and I’m just increasing my chances of long term side effects. Like MDA, MSK is a top facility with some very big name melanoma specialists but there isn’t any large scale clinical trials to back up their recommendation even though I feel they are correct.

        Bill

      • June 29, 2018 at 1:38 pm
      Nick C
      Participant

      Great to hear from you. Hopefully, this works for you. I have had to switch to Yervoy…my backpocket savings.

      Nick

        • June 29, 2018 at 8:33 pm
        TexMelanomex
        Participant

        Hey Nick! How are you doing on the Yervoy? Are you doing the Opdivo/Yervoy combo or just Yervoy?

         

        • June 30, 2018 at 12:43 am
        Nick C
        Participant

        Just the Yervoy. Already did the Keytruda twice. So far, no noticeable side effects…two more treatments to go. Will know after my scan in August.

        Keep up the fight, my brother.

        Nick

         

        • June 30, 2018 at 1:02 am
        TexMelanomex
        Participant

        Right on, you too! Two rounds of Yervoy, no side effects…you are a warrior man!

         

Viewing 2 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.