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Scan and more

Forums General Melanoma Community Scan and more

  • Post
    tedtell1
    Participant

    Hey good friends;

    My blood work was a little quirky this morning pre infusion (Nivo every two weeks). Last time my TSH had increased a whole percentage point while still being in the normal range from 2.5 to 3.8 in two weeks. Interesting, but still in normal range. Today TSH had dropped to 1.0 and BUN was at 28 (normal is 26). Any thoughts, or just my hypersensitivity to anything different? Also, having my PET/CT full body scan tomorrow for the second time since diagnosis. First was clear. Little worried as I have had a persistent cough for 10 days and can't shake it with antibiotics or anything else. Probably nothing…but you know, HYPERSENSITIVE!

    I welcome your prayers, loving thoughts (I have so many supportive friends and family who aren't in to praying, I have learned to welcome that too). Thanks so much for being a place where everyone knows where I am coming from!!!!

    Love you all,

    Ted

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  • Replies
      Linda5
      Participant

      Hi Ted!  I had a very similar experience… TSH way up then way down…I’m now on Synthroid.  I understand this is quite common, you may want to discuss it with your doc.  Good luck!  

      Bubbles
      Participant

      Hey Ted, 

      Normal is a big place!!!  We create parameters for lab values but the room for error is a little bigger.  So, that sounds like where your labs have fallen…within the margin of error for the labs….esp if you are symptom free…but it would be nice to just be "normal" wouldn't if???  Then again…where is the fun in that????

      I know every sign and symptom seems like a death sentence – or at very least the drum beat of doom!!!  Melanoma is a weird world we live in.  A bit ago I had some pretty significant joint and hip pain…so the little rolodex in my mind flips to, "Hmmmm, bone mets?"  But, my more reality oriented side said, "Uhhh, you just increased your miles run per week substantially and you're 53?????  Duh…..  Think about it!!"  My snarky, commonsense lobe was right!  So….no words of wisdom here!!  Just hang in there and I have all fingers and toes crossed for excellent scanage tomorrow!!  celeste

      jbronicki
      Participant

      I agree with Bubbles/Celeste.  As someone that works directly with clinical research data, lab ranges are an insteresting beast.  There is normal and then there is "normal" based on things like gender, ethnicity, height, weight (depending on what you are measuring for and which disease state).  So what could be a lab range that one clinic is using, might not be the normal for you anyways. We usually confirm our lab ranges with investigators, etc.depending on multiple variables and many many other factors.   So there can be bigger sweet spots than people think sometimes.  AND…..TSH can be even more complex as an endicronologist might have a different range for what they consider normal from another type of physician.  Some consider anything in the lab range as normal and some consider values in the range as subclinical depending on the number.  TSH outside of melanoma, has a lot of stuff going on.  I've had mine tested one week apart (I'm not on anything or any treatments for anything, my husband has melanoma) and gotten two very different values. 

      Plus the drugs can mess it all up as we all know.  When I was in dialysis research, the dialysate and treatemtn could mess up electrolytes/hemoglobin and then you needed EPO, potassium etc..  YADA YADA YADA It's a balancing act at times.  I used to think of it as a cascade of events from point of treatment.

      It's a real roller coaster at times, so Normal is good at any point! 

      The scanxiety is real, allow yourself to know that it's hard to control the anxiety at times, especially before scans.  In reality, who the heck WOULDN'T be nervous going through all this.  It's big stuff.

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