To the attention of all mucosal melanoma patients

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To the attention of all mucosal melanoma patients

This topic has 1 reply, 1 voice, and was last updated 6 years, 9 months ago by Cindyco.

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- July 19, 2017 at 1:30 pm
- Quote
adrianc
Participant
So yesterday I met with Dr.Stephen Hodi and his team at Dana Farber. We discussed treatment options for stage 2 and 3 mucosal melanoma patients. In short, he confirmed that surgical resection is the best initial course of action for this type of cancer when applicable . Interferon and Yervoy / also radiation/ are the current options for adjuvant therapy for resected mucosal melanoma for stage 2 and 3 .However he said no one can predict if they can work or not on mucosal melanoma as these drugs were developed for cutaneous melanoma .Dr.Hodi gave me a printout of a clinical trial conducted recently in China for patients with resected mucosal melanoma stage 2 and 3 with a chemotherapy drug that showed promising results / 40% response rate/ and 2 years longer OS. He noted again,no one can predict if this chemo drug can apply individually.If any of you mucosal melanoma fellow warriors is interested in getting a scanned copy of that clinical trial, please feel free to direct message me including your E-mail address, so I can email it to you.

Connie D.,I tried to call you this morning .I hope that you mom is doing good and feeling well with not too bad side effects in her current clinical trial.

Have a great day everyone,

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- - July 19, 2017 at 5:53 pm
  - Quote
  Cindyco
  Participant
  Hi Teodora,
  
  Was it Cisplatin/Temodar? I found an old thread from some people who have done that: https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/why-try-temozolomidecisplatin I also know of a specific person with mucosal melanoma that has done this that I can put you in touch with if you like!
  
  The other chemo-one that I know of in China is Avastin/Carboplatin/Abraxane (or Paclitaxel, which is just Abraxane).
  
  My mom's oncologist at MD Anderson did wonder whether people of Chinese descent respond better to chemo for biological reasons because I remember that they don't get the same response rates to chemo here in the US.
  
  Thanks for sharing and I look forward to seeing the scans!

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Tagged: cutaneous melanoma, mucosal melanoma

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