The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

To Wait or Not To Wait

Forums General Melanoma Community To Wait or Not To Wait

  • Post
    RitysMom
    Participant

    My sweet Kristine called me today and said she can now feel two of the tumors. So it's looking like she has stopped responding to Taf/Mek. She has an appt to see a melanoma specialist at MD Anderson on 3/27, but plans to call her local oncologist tomorrow and try to be seen this week. I'm assuming he will start her on immunotherapy…would her starting a new treatment affect her consultation at MDA? Or should she wait two weeks til she's seen by the specialist? Obviously I want her to do whatever it takes to destroy the cancer…I would be thrilled if they surgically removed the remaining tumors tomorrow!

Viewing 0 reply threads
  • Replies
      maperny
      Participant

      Hi CindI,

       So sorry that Kristine may not be responding, I would image that some scans will be needed to assess if the Taf/Mek has indeed stopped working and so it would be good to get that process going quickly.  Then she can see what the local oncologist recommends, if it is moving onto the ipi/nivo combo then I suspect this would be the same recommendation as MD Anderson, but of course good to get a second opinion from a melanoma specialist.  As to when to start immunotherapy, think Kristine should decide that based on what the scans say and oncologist recommends.

      Maria

       

Viewing 0 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics