MRF-Logo2019-Horizontal-RGB
Oral mucosal melanoma – any help in Canada?
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Oral mucosal melanoma – any help in Canada?

› Forums › Mucosal Melanoma Community › Oral mucosal melanoma – any help in Canada?

  • Post
    • August 14, 2015 at 8:05 pm
    green7ea
    Participant

      Hi everyone,

      My cousin, 32 and otherwise very healthy, was recently diagnosed with oral mucosal melanoma.  We've been on the hunt for a specialist or cancer center in Canada that have experience in treating this form of cancer.  Right now we have an option to treat him in China for the short term, as they have more experience with this type of cancer.  But we need to figure out an option for his long term care within Canada, can't keep going back to China.  Does anyone have any knowledge of who/where we should go to for help on his treatment?

      Thank you so much for your help!!

    Viewing 5 reply threads
    • Replies
        • August 15, 2015 at 1:09 am
        CHD
        Participant

          You may find this web site helpful:

          http://melanomainternational.org/web-resources/global-resources/#5

          Best wishes to your cousin!

          Cheri

          • August 15, 2015 at 1:09 am
          CHD
          Participant

            You may find this web site helpful:

            http://melanomainternational.org/web-resources/global-resources/#5

            Best wishes to your cousin!

            Cheri

              • August 15, 2015 at 1:16 am
              CHD
              Participant

                P.S. While on that same web site, I also found this:

                http://www.oralcancerfoundation.org/

                Not in Canada but wonder if you could contact them to ask for recommendations for melanoma specialists in Canada.

                • August 19, 2015 at 4:41 pm
                green7ea
                Participant

                  thank you for your help!  I will check those sites out.

                  • August 19, 2015 at 4:41 pm
                  green7ea
                  Participant

                    thank you for your help!  I will check those sites out.

                    • August 19, 2015 at 4:41 pm
                    green7ea
                    Participant

                      thank you for your help!  I will check those sites out.

                      • August 15, 2015 at 1:16 am
                      CHD
                      Participant

                        P.S. While on that same web site, I also found this:

                        http://www.oralcancerfoundation.org/

                        Not in Canada but wonder if you could contact them to ask for recommendations for melanoma specialists in Canada.

                        • August 15, 2015 at 1:16 am
                        CHD
                        Participant

                          P.S. While on that same web site, I also found this:

                          http://www.oralcancerfoundation.org/

                          Not in Canada but wonder if you could contact them to ask for recommendations for melanoma specialists in Canada.

                        • August 15, 2015 at 1:09 am
                        CHD
                        Participant

                          You may find this web site helpful:

                          http://melanomainternational.org/web-resources/global-resources/#5

                          Best wishes to your cousin!

                          Cheri

                          • August 16, 2015 at 3:23 pm
                          dfeng
                          Participant

                            I doubt in China they got more experience, since melanoma impact more light skin color people than dark skin color people.

                            17 years ago I was in China and found melanoma, and there were really very very few people I saw in treatment.

                              • August 19, 2015 at 4:45 pm
                              green7ea
                              Participant

                                With cutaneous melanoma (those appearing on the outer skin), yes it is more common in light skinned races.  But with mucosal melanoma, which appears on the inner linings, these are more common in those of Asian heritage.  This is why China and Japan both have more experience in these type of melanomas than the Western countries.

                                • August 19, 2015 at 4:45 pm
                                green7ea
                                Participant

                                  With cutaneous melanoma (those appearing on the outer skin), yes it is more common in light skinned races.  But with mucosal melanoma, which appears on the inner linings, these are more common in those of Asian heritage.  This is why China and Japan both have more experience in these type of melanomas than the Western countries.

                                  • August 19, 2015 at 4:46 pm
                                  green7ea
                                  Participant

                                    Thank you for sharing your information though, and best of luck to you!

                                    • August 19, 2015 at 4:46 pm
                                    green7ea
                                    Participant

                                      Thank you for sharing your information though, and best of luck to you!

                                      • August 19, 2015 at 4:46 pm
                                      green7ea
                                      Participant

                                        Thank you for sharing your information though, and best of luck to you!

                                        • August 19, 2015 at 4:45 pm
                                        green7ea
                                        Participant

                                          With cutaneous melanoma (those appearing on the outer skin), yes it is more common in light skinned races.  But with mucosal melanoma, which appears on the inner linings, these are more common in those of Asian heritage.  This is why China and Japan both have more experience in these type of melanomas than the Western countries.

                                        • August 16, 2015 at 3:23 pm
                                        dfeng
                                        Participant

                                          I doubt in China they got more experience, since melanoma impact more light skin color people than dark skin color people.

                                          17 years ago I was in China and found melanoma, and there were really very very few people I saw in treatment.

                                          • August 16, 2015 at 3:23 pm
                                          dfeng
                                          Participant

                                            I doubt in China they got more experience, since melanoma impact more light skin color people than dark skin color people.

                                            17 years ago I was in China and found melanoma, and there were really very very few people I saw in treatment.

                                        Viewing 5 reply threads

                                        Tagged: 

                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                        Popular Topics