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Conditional Survival – 4 years post surgery

Forums General Melanoma Community Conditional Survival – 4 years post surgery

  • Post
    andrewuk
    Participant

    Hi all – I am brand new to this site so appreciate any views and opinions given.

    There seems to be very little out there in terms of conditional survival rates.

    I am 4 years post initial surgery of a 2B melanoma with clear sentinel lymph biopsy.

    Is it safe to assume, as time goes on, my survival statistics improve quite considerably?

    All of my follow up appointments during the last 4 years have been clear with nothing detected.

    Thank you.

Viewing 14 reply threads
  • Replies
      stars
      Participant

      Interesting question. i think with other types of cancer, the 5 year mark takes you back into normal lifespan/survival expectations. I'm not sure this is the case with melanoma… Stats are often in 5 and 10 year rates, suggesting that impact of disease can extend beyond the five year mark. For examples:

      http://www.melanomapatients.org.au/information/statistics/prognosis

      If you read some of the posts on the forum you will read about both extended periods of time with no problems – like you – but also people plagued with recurrence years and years after diagnosis. Hopefully you will remain in the first group forever more!

      stars
      Participant

      Interesting question. i think with other types of cancer, the 5 year mark takes you back into normal lifespan/survival expectations. I'm not sure this is the case with melanoma… Stats are often in 5 and 10 year rates, suggesting that impact of disease can extend beyond the five year mark. For examples:

      http://www.melanomapatients.org.au/information/statistics/prognosis

      If you read some of the posts on the forum you will read about both extended periods of time with no problems – like you – but also people plagued with recurrence years and years after diagnosis. Hopefully you will remain in the first group forever more!

      stars
      Participant

      Interesting question. i think with other types of cancer, the 5 year mark takes you back into normal lifespan/survival expectations. I'm not sure this is the case with melanoma… Stats are often in 5 and 10 year rates, suggesting that impact of disease can extend beyond the five year mark. For examples:

      http://www.melanomapatients.org.au/information/statistics/prognosis

      If you read some of the posts on the forum you will read about both extended periods of time with no problems – like you – but also people plagued with recurrence years and years after diagnosis. Hopefully you will remain in the first group forever more!

      Janner
      Participant

      Yes, the survival curves do increase over time and at some year out, begin to level off.  They never go to zero as melanoma can recur many years out.  But your odds do increase the longer out you go from your initial diagnosis.

      Janner
      Participant

      Yes, the survival curves do increase over time and at some year out, begin to level off.  They never go to zero as melanoma can recur many years out.  But your odds do increase the longer out you go from your initial diagnosis.

      Janner
      Participant

      Yes, the survival curves do increase over time and at some year out, begin to level off.  They never go to zero as melanoma can recur many years out.  But your odds do increase the longer out you go from your initial diagnosis.

      Kim K
      Participant

      Each day you live without a recurrence the more likely you will continue to do so.  That being said, it is not unheard of to have a relapse decades later.  Stay vigilant.

      I was diagnosed 2A.  Eight years later by happenstance had a back x-ray which picked up a lung nodule.  No symptoms, nothing.  I went straight to stage IV.  Fortunately that was 5 years ago.  Following lung surgery and a course of IL-2, I became NED.

      Because I had systemic treatment with IL-2 and have been NED for 5 years, I probably won't have a recurrance, at least according to the latest long term survival study of IL-2 patients.  That is what I hang my hat on.

      Lesson – never turn your back on it, keep getting your scans or visits to onc. as required.  In my case I moved home 4 years after my initial diagnosis and never followed up with an oncologist.  I was lucky my chiropracter inadverdently saved my life.  Very rare for someone at my stage and that far out to relapse, but I did.  Fortunately my ability to do the rare thing followed me and I was successful with IL-2.

      Best of luck!

      Kim K
      Participant

      Each day you live without a recurrence the more likely you will continue to do so.  That being said, it is not unheard of to have a relapse decades later.  Stay vigilant.

      I was diagnosed 2A.  Eight years later by happenstance had a back x-ray which picked up a lung nodule.  No symptoms, nothing.  I went straight to stage IV.  Fortunately that was 5 years ago.  Following lung surgery and a course of IL-2, I became NED.

      Because I had systemic treatment with IL-2 and have been NED for 5 years, I probably won't have a recurrance, at least according to the latest long term survival study of IL-2 patients.  That is what I hang my hat on.

      Lesson – never turn your back on it, keep getting your scans or visits to onc. as required.  In my case I moved home 4 years after my initial diagnosis and never followed up with an oncologist.  I was lucky my chiropracter inadverdently saved my life.  Very rare for someone at my stage and that far out to relapse, but I did.  Fortunately my ability to do the rare thing followed me and I was successful with IL-2.

      Best of luck!

      Kim K
      Participant

      Each day you live without a recurrence the more likely you will continue to do so.  That being said, it is not unheard of to have a relapse decades later.  Stay vigilant.

      I was diagnosed 2A.  Eight years later by happenstance had a back x-ray which picked up a lung nodule.  No symptoms, nothing.  I went straight to stage IV.  Fortunately that was 5 years ago.  Following lung surgery and a course of IL-2, I became NED.

      Because I had systemic treatment with IL-2 and have been NED for 5 years, I probably won't have a recurrance, at least according to the latest long term survival study of IL-2 patients.  That is what I hang my hat on.

      Lesson – never turn your back on it, keep getting your scans or visits to onc. as required.  In my case I moved home 4 years after my initial diagnosis and never followed up with an oncologist.  I was lucky my chiropracter inadverdently saved my life.  Very rare for someone at my stage and that far out to relapse, but I did.  Fortunately my ability to do the rare thing followed me and I was successful with IL-2.

      Best of luck!

      _Paul_
      Participant

      My oncologist and I have been talking about this very subject. And yes, as other posters have said, the odds of continued survival increase the longer one survives. There is statistics behind it, based on Baye's Thereom of conditional probability.

      Woohoo!!!

      Best of luck – Paul

       

       

      _Paul_
      Participant

      My oncologist and I have been talking about this very subject. And yes, as other posters have said, the odds of continued survival increase the longer one survives. There is statistics behind it, based on Baye's Thereom of conditional probability.

      Woohoo!!!

      Best of luck – Paul

       

       

      _Paul_
      Participant

      My oncologist and I have been talking about this very subject. And yes, as other posters have said, the odds of continued survival increase the longer one survives. There is statistics behind it, based on Baye's Thereom of conditional probability.

      Woohoo!!!

      Best of luck – Paul

       

       

      andrewuk
      Participant

      Thank you for your replies. I have become fully aware of "looking over your shoulder" so to speak, for the rest of my life.

      Even a minor illness to me makes me worry "… is it back?" – I suppose there are plenty of other people who are fully aware of the fact it can reoccur years later!

      Thanks again.

      andrewuk
      Participant

      Thank you for your replies. I have become fully aware of "looking over your shoulder" so to speak, for the rest of my life.

      Even a minor illness to me makes me worry "… is it back?" – I suppose there are plenty of other people who are fully aware of the fact it can reoccur years later!

      Thanks again.

      andrewuk
      Participant

      Thank you for your replies. I have become fully aware of "looking over your shoulder" so to speak, for the rest of my life.

      Even a minor illness to me makes me worry "… is it back?" – I suppose there are plenty of other people who are fully aware of the fact it can reoccur years later!

      Thanks again.

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