Bring Mucosal Melanoma Together
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Bring Mucosal Melanoma Together

› Forums › Mucosal Melanoma Community › Bring Mucosal Melanoma Together

  • Post
    • June 17, 2015 at 8:56 pm
    EricaLoney78
    Participant

    Hello, my name is Erica and I have posted before about my mom have Oral Mucosal Melanoma.

    I want to bring us all together. I have been posting everywhere people with melanoma are to share with them my new FB PAGE. If we all have a meeting place specifically for MM then it's easier… Please come to

    https://www.facebook.com/Mucosalmelanomawarriors

    thank you so much and see you there!

Viewing 2 reply threads
  • Replies
      • June 21, 2015 at 3:07 pm
      Becky
      Participant

      erica

      Thanks for starting this facebook page. I will be follwoing it, but hesitiate to post for now, only becuase my son is a little private about this. my son Ben was also diagnosed with oral melanoma right before he turned 21. His was on the tip of his tongue . Oral melanoma rare enough, and the location even rarer!

      His had spread to one lymph node. Had CLD and a year of interferon. He is now 5 years NED!

      At the time of dx I knew better than to do too much googling and researciing on the ineternet, but couldnt help myslef. All I saw were very grim statisitics and so this was a very scary time for us. It still is, espiecally during the wait to find out scan results.

      again, thanks for giving a voice to those with this rare form of melanoma.

       

      Becky

        • June 21, 2015 at 3:08 pm
        Becky
        Participant

        ps…this site needs automatic spell check, I just noticed all my typos!

        • June 21, 2015 at 3:08 pm
        Becky
        Participant

        ps…this site needs automatic spell check, I just noticed all my typos!

        • June 21, 2015 at 3:08 pm
        Becky
        Participant

        ps…this site needs automatic spell check, I just noticed all my typos!

      • June 21, 2015 at 3:07 pm
      Becky
      Participant

      erica

      Thanks for starting this facebook page. I will be follwoing it, but hesitiate to post for now, only becuase my son is a little private about this. my son Ben was also diagnosed with oral melanoma right before he turned 21. His was on the tip of his tongue . Oral melanoma rare enough, and the location even rarer!

      His had spread to one lymph node. Had CLD and a year of interferon. He is now 5 years NED!

      At the time of dx I knew better than to do too much googling and researciing on the ineternet, but couldnt help myslef. All I saw were very grim statisitics and so this was a very scary time for us. It still is, espiecally during the wait to find out scan results.

      again, thanks for giving a voice to those with this rare form of melanoma.

       

      Becky

      • June 21, 2015 at 3:07 pm
      Becky
      Participant

      erica

      Thanks for starting this facebook page. I will be follwoing it, but hesitiate to post for now, only becuase my son is a little private about this. my son Ben was also diagnosed with oral melanoma right before he turned 21. His was on the tip of his tongue . Oral melanoma rare enough, and the location even rarer!

      His had spread to one lymph node. Had CLD and a year of interferon. He is now 5 years NED!

      At the time of dx I knew better than to do too much googling and researciing on the ineternet, but couldnt help myslef. All I saw were very grim statisitics and so this was a very scary time for us. It still is, espiecally during the wait to find out scan results.

      again, thanks for giving a voice to those with this rare form of melanoma.

       

      Becky

Viewing 2 reply threads

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