› Forums › Mucosal Melanoma Community › Any mucosal melanomas out there?
- This topic has 3 replies, 1 voice, and was last updated 9 years ago by CHD.
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- May 5, 2015 at 3:06 pm
There are a few of us out here. : ) My own specialist told me they do not necessarily differentiate between nodular versus superficial spreading anymore in any meaningful way; it is all malignant melanoma, mucosal versus cutaneous. Much depends on whether the melanoma is more slow or fast growing, and I believe it is true that the superficial spreading type is more likely to be slow growing than the nodular type because it can have a longer period of horizontal versus vertical growth. I can't say with 100% certainty but my impression is that treatment tends now to be based more on things such as whether the melanoma is BRAF or KIT positive or negative, etc. I believe the anti-PD1 drugs, especially in combination with ipi (Yervoy) have had some very positive results. Am sure there are others here more knowledgeable than myself. Hope you are being seen by a melanoma specialist at a major treatment center because this is a field that is changing rapidly. Wishing you well.
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- May 5, 2015 at 3:06 pm
There are a few of us out here. : ) My own specialist told me they do not necessarily differentiate between nodular versus superficial spreading anymore in any meaningful way; it is all malignant melanoma, mucosal versus cutaneous. Much depends on whether the melanoma is more slow or fast growing, and I believe it is true that the superficial spreading type is more likely to be slow growing than the nodular type because it can have a longer period of horizontal versus vertical growth. I can't say with 100% certainty but my impression is that treatment tends now to be based more on things such as whether the melanoma is BRAF or KIT positive or negative, etc. I believe the anti-PD1 drugs, especially in combination with ipi (Yervoy) have had some very positive results. Am sure there are others here more knowledgeable than myself. Hope you are being seen by a melanoma specialist at a major treatment center because this is a field that is changing rapidly. Wishing you well.
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- May 5, 2015 at 3:06 pm
There are a few of us out here. : ) My own specialist told me they do not necessarily differentiate between nodular versus superficial spreading anymore in any meaningful way; it is all malignant melanoma, mucosal versus cutaneous. Much depends on whether the melanoma is more slow or fast growing, and I believe it is true that the superficial spreading type is more likely to be slow growing than the nodular type because it can have a longer period of horizontal versus vertical growth. I can't say with 100% certainty but my impression is that treatment tends now to be based more on things such as whether the melanoma is BRAF or KIT positive or negative, etc. I believe the anti-PD1 drugs, especially in combination with ipi (Yervoy) have had some very positive results. Am sure there are others here more knowledgeable than myself. Hope you are being seen by a melanoma specialist at a major treatment center because this is a field that is changing rapidly. Wishing you well.
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Tagged: cutaneous melanoma, mucosal melanoma
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