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T.C.
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T.C.

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      • September 30, 2020 at 3:25 am
      T.C.
      Participant
        Hi Ann, Sorry to hear you have joined the stage IV club. I unfortunately was inducted into the club last April. My wife and I did quite a bit of research and spoke with 3 Oncologist before selecting an Adjuvant Therapy treatment plan. The Oncologist were from Mayo Clinic, Moffitt Cancer Center, and Massachusetts General Hospital. Two of the 3 Doctors recommended a targeted adjuvant therapy plan with Dabrafenib (Tafinlar) and Trametinib (Mekinist) to combat the BRAF mutation V600E that had metastasized to my intestines. The other option was Keytruda which was recommended by the Oncologist from Mayo. I opted for the pill targeted therapy taking the Tafinlar and Mekinist daily for a year. Hoping that it will kill the melanoma cells that may be floating around in my system. It’s only been 5 months and I have experienced side effects but am able to function okay. I strongly recommend getting a second and possibly a third opinion if you can.
        I have my 6 month battery of test mid October. Hoping for the best. I also hope the best for you and send all good thoughts your way. Stay strong!
        • September 14, 2020 at 2:07 am
        T.C.
        Participant
          I find that odd that not much information was provided to you. Th number of Oncologists and Dermatologists that I have seen always had plenty of literature for my wife and I to review. I also found way more information than I needed on the WEB. American Cancer Sopciety has plenty of information for you to absorb.

          Good luck

          • September 21, 2020 at 1:43 am
          T.C.
          Participant
            Hi JAH,

            Thanks for the info. I appreciate your comments and wish you all the best. The side effects do suck. I am on a reduced regiment and that does seems more tolerable at this point. Advil and Tylenol do seem to help but I was hoping there was a better treatment for the crappy side effects. A friend gave me a few laced mj gummies for the nausea and that seemed to work well. Was wondering if anyone else had the same experience.

            Wish you the best, stay strong.

            T.C.

            • September 21, 2020 at 1:33 am
            T.C.
            Participant
              Hello Summer,

              So sorry to hear what you and your mom are dealing with. You are both in my thoughts and prayers. Stay strong. All the best. Give mom a hug from a total stranger, me.

              Thanks for the encouragement.

              T.C.

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