@stotes
Forum Replies Created
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- September 10, 2016 at 7:59 pm
Jenn – This is a very interesting topic and something that I just started trying to research. I just had a PET/CT scan done and there is an area on my right gluteus maximus muscle that is "suspicious for melanoma" and has an SUV of 3.6 and also there were some "prominent left axillary nodes with no uptake". These are both new findings since my last scan. I had this scan done because I had a "bump" that grew on my right upper back while taking Ipi. I had a excisional biopsy done and it tested negative for melanoma. Two months later it grew back and I had it removed again and this time it was positive for melanoma. I have taken three doses of Ipi at this time. It's all so confusing and hard to understand. Everyone has a different opinion even the melanoma specialists themselves (my doc is listed as a melanoma specialist and has consulted with one of the "top" specialists also). Glad to have found this topic. Hope your results are good and I am impressed with your positive attitude. I am working on trying not to stress about all of this but it has been a struggle. Best of luck! Christal
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- September 10, 2016 at 7:59 pm
Jenn – This is a very interesting topic and something that I just started trying to research. I just had a PET/CT scan done and there is an area on my right gluteus maximus muscle that is "suspicious for melanoma" and has an SUV of 3.6 and also there were some "prominent left axillary nodes with no uptake". These are both new findings since my last scan. I had this scan done because I had a "bump" that grew on my right upper back while taking Ipi. I had a excisional biopsy done and it tested negative for melanoma. Two months later it grew back and I had it removed again and this time it was positive for melanoma. I have taken three doses of Ipi at this time. It's all so confusing and hard to understand. Everyone has a different opinion even the melanoma specialists themselves (my doc is listed as a melanoma specialist and has consulted with one of the "top" specialists also). Glad to have found this topic. Hope your results are good and I am impressed with your positive attitude. I am working on trying not to stress about all of this but it has been a struggle. Best of luck! Christal
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- September 10, 2016 at 7:59 pm
Jenn – This is a very interesting topic and something that I just started trying to research. I just had a PET/CT scan done and there is an area on my right gluteus maximus muscle that is "suspicious for melanoma" and has an SUV of 3.6 and also there were some "prominent left axillary nodes with no uptake". These are both new findings since my last scan. I had this scan done because I had a "bump" that grew on my right upper back while taking Ipi. I had a excisional biopsy done and it tested negative for melanoma. Two months later it grew back and I had it removed again and this time it was positive for melanoma. I have taken three doses of Ipi at this time. It's all so confusing and hard to understand. Everyone has a different opinion even the melanoma specialists themselves (my doc is listed as a melanoma specialist and has consulted with one of the "top" specialists also). Glad to have found this topic. Hope your results are good and I am impressed with your positive attitude. I am working on trying not to stress about all of this but it has been a struggle. Best of luck! Christal
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- August 31, 2016 at 11:29 pm
Ashley,
Thank you for your reply. I once read one of your posts and remember it because you said you were from North Dakota. I am confused why you would get traditional chemo (I read that in your bio). I tried to go to MDA even for a second opinion and my insurance would not cover it; a consult alone (no labs,testing or scans) was quoted at $2500. I have been going to the University of Minnesota (five hours away). My Oncologist is recommending the Ipi/Nivo combo essentially with continues Nivo alone – that is how I understand it. How did you tolerate the combo as far as side effects?
Christal
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- August 31, 2016 at 11:29 pm
Ashley,
Thank you for your reply. I once read one of your posts and remember it because you said you were from North Dakota. I am confused why you would get traditional chemo (I read that in your bio). I tried to go to MDA even for a second opinion and my insurance would not cover it; a consult alone (no labs,testing or scans) was quoted at $2500. I have been going to the University of Minnesota (five hours away). My Oncologist is recommending the Ipi/Nivo combo essentially with continues Nivo alone – that is how I understand it. How did you tolerate the combo as far as side effects?
Christal
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- August 31, 2016 at 11:29 pm
Ashley,
Thank you for your reply. I once read one of your posts and remember it because you said you were from North Dakota. I am confused why you would get traditional chemo (I read that in your bio). I tried to go to MDA even for a second opinion and my insurance would not cover it; a consult alone (no labs,testing or scans) was quoted at $2500. I have been going to the University of Minnesota (five hours away). My Oncologist is recommending the Ipi/Nivo combo essentially with continues Nivo alone – that is how I understand it. How did you tolerate the combo as far as side effects?
Christal
