Steve D
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Steve D

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • April 19, 2018 at 8:53 pm
      Steve D
      Participant

      Ann, I'm glad that you are 6 years and running. We are about to have a conversation about introducing Ketruda into the mix. We were told that even adding the Taf/Mek would be risky because of the Opdivo/Yervoy already in her system. (3 infusions before stopping and going on taf/mek) So we are already worried. So far, it's been a week on Taf/Mek and nothing as far as side effects go. The bloodwork will tell us more about that. She is improving but slowly. What's your experience with Keytruda, did your husband ever have Opdivo too?  Seems like my wife is becoming a bit of a chemical storehouse. Thanks

      • April 19, 2018 at 8:52 pm
      Steve D
      Participant

      Ann, I'm glad that you are 6 years and running. We are about to have a conversation about introducing Ketruda into the mix. We were told that even adding the Taf/Mek would be risky because of the Opdivo/Yervoy already in her system. (3 infusions before stopping and going on taf/mek) So we are already worried. So far, it's been a week on Taf/Mek and nothing as far as side effects go. The bloodwork will tell us more about that. She is improving but slowly. What's your experience with Keytruda, did your husband ever have Opdivo too?  Seems like my wife is becoming a bit of a chemical storehouse. Thanks

      • April 19, 2018 at 8:41 pm
      Steve D
      Participant

      Thank you for that. We are worried about the meninges as well. There is cancer there too and talk of LMD. I'm hoping that the treatments can reach there as well. Anything on strategies in that area? Thanks again.

       

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.