Melanoma Research Foundation | space oddity | Activity https://forum.melanoma.org/user/space-oddity/activity/ Activity feed for space oddity. Wed, 22 Apr 2026 04:32:14 -0400 https://buddypress.org/?v= en-US 30 hourly 2 f24bd50d1e2aa0f1fb95be333e135d90 space oddity started the topic Lenvatinib in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lenvatinib/ Mon, 20 Nov 2023 12:40:05 -0500 My husband had a recurrence, after three years of being NED and free of treatment (thanks to keytruda). A little black spot under the skin found a month ago was indeed melanoma. Pet scan followed which showed few spots in lungs with very low SUV, but also a lit up vertebra in his spine (SUV 5,2). His doctor suggested keytruda again,along with…Read more

]]> 969bc7f20b559c9f7bbadbe6556c88cd space oddity replied to the topic Recurrence- help please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrence-help-please/#post-279389 Wed, 18 Oct 2023 15:54:41 -0400 Thank you so much for your answer. So, it is possible to continue with immunotherapy, even two years after it was discontinued? That’s probably a relief.
Also, can we feel optimistic about the fact that his recurrences were always locoregional?

]]> 953327c8b5e6d157f0dee303583cde4a space oddity started the topic Recurrence- help please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrence-help-please/ Wed, 18 Oct 2023 12:48:29 -0400 My husband had his first surgery for melanoma in 2014. There was a recurrence in a lump in 2016 and treatment began: ipilimumab at first and then tafinlar, but there was another lump under the skin so he had to stop. Then,keytruda was introduced. He was taking keytruda for almost three years, until 2020.
For three years he was NED until a we…Read more

]]> b1c5469190fa57d4c98903be0e594929 space oddity replied to the topic The right questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/the-right-questions/#post-273981 Wed, 20 Jan 2021 23:24:35 -0500 Thank you for your responses. Indeed, the discussion went around the limited history of immunotherapy, getting vaccined and tests every three months. Fingers crossed!

]]> 8aa04436e48ccadf667715cfb1a86665 space oddity started the topic The right questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/the-right-questions/ Sat, 16 Jan 2021 19:35:51 -0500 Hello to you all and wish you a healthy, better New Year.

After a long battle with melanoma, my husband became NED and stopped taking Keytruda last November. On Monday, he is going to have his first appointment with his doctor after the completion of his therapy in order to discuss what is going to follow. It’s hard to find his oncologist on the…Read more

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