rwaxsis
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rwaxsis

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      • April 25, 2018 at 6:46 pm
      rwaxsis
      Participant

      My husband just (today) has his second double dose. The first was similar to your reaction- the normal side effects but a little stronger and faster.  Today the doctor wrote for the double dose over half an hour rather than over an hour as he was used to. He had some different reactions. Some neck pain that moved to his head and a feeling of unsteadiness. The pain passed as the infusion ended but he reported feeling a little "drunk" for an hour or two.  I suggested that we request the infusion over an hour the next time but he really liked getting out more quickly. We will see….

      He is lucky to have a port so usually has no issues except a couple times when they couldn't get a blood return. 

      Once a month will be such a nice change over every other week. At our local infusion center, he is the only one doing the double dose right now.  His primary oncologist at the Hillman Center in Pittsburgh, is moving everyone to the double dose as quickly as insurance approvals permit. 

      • September 28, 2017 at 2:38 am
      rwaxsis
      Participant

      Just back from my husband's quarterly scan and doctor appointment.  Husband is one year into treatment; yervo/opdivo combination and now just opdivo.  Scans show no new tumors and slight improvement with each set of scans.  The doc discussed stopping treatment after two years, regardless of the degree of response.  He said there does not seem to be a benefit in continuing longer than two years and used the word "Cure".  Wow…    Doc also said that we will not be making a decision now, will wait until next year and discuss again then.  That will give another year's worth of data and opinions by all the experts.

      Doc also told us that Bristol Myer Squibb has applied for FDA approval to take Opdivo treatment to every four weeks with a double dose given.  Has anyone else been hearing that?

      Lots of positives for those lucky responders!

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