Forum Replies Created
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- October 15, 2016 at 3:27 pm
Thank you so much, Niki. This information is very, very helpful. I am conflicted because we saw a melanoma specialist at Uof I, but our son is only his 3rd pediatric case in 10 years. He said to us, it didn't matter Ross was a pediatric patient, "Melanoma is melanoma." But from what I have researched online, which I know is not always correct, childhood melanoma may act differently in kids than adults. I just want to speak with someone that has more experience before I can feel completely at ease. We just have so many questions about going forward and "what now" that I want someone that is a ped onc- melanoma specialty- to answer. I sent an email to St. Jude's melanoma referral email and am anxiously awaiting to hear back. Thank you again for taking time to respond!
-April
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- October 15, 2016 at 3:27 pm
Thank you so much, Niki. This information is very, very helpful. I am conflicted because we saw a melanoma specialist at Uof I, but our son is only his 3rd pediatric case in 10 years. He said to us, it didn't matter Ross was a pediatric patient, "Melanoma is melanoma." But from what I have researched online, which I know is not always correct, childhood melanoma may act differently in kids than adults. I just want to speak with someone that has more experience before I can feel completely at ease. We just have so many questions about going forward and "what now" that I want someone that is a ped onc- melanoma specialty- to answer. I sent an email to St. Jude's melanoma referral email and am anxiously awaiting to hear back. Thank you again for taking time to respond!
-April
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- October 15, 2016 at 3:27 pm
Thank you so much, Niki. This information is very, very helpful. I am conflicted because we saw a melanoma specialist at Uof I, but our son is only his 3rd pediatric case in 10 years. He said to us, it didn't matter Ross was a pediatric patient, "Melanoma is melanoma." But from what I have researched online, which I know is not always correct, childhood melanoma may act differently in kids than adults. I just want to speak with someone that has more experience before I can feel completely at ease. We just have so many questions about going forward and "what now" that I want someone that is a ped onc- melanoma specialty- to answer. I sent an email to St. Jude's melanoma referral email and am anxiously awaiting to hear back. Thank you again for taking time to respond!
-April
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- October 15, 2016 at 12:03 am
Thank you!
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- October 15, 2016 at 12:03 am
Thank you!
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- October 15, 2016 at 12:03 am
Thank you!
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- October 15, 2016 at 12:02 am
Thank you!
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- October 15, 2016 at 12:02 am
Thank you!
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- October 15, 2016 at 12:02 am
Thank you!
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- October 14, 2016 at 10:32 pm
And that is another question- they never gave us a clear staging or classification of his specific type of melanoma. Does the Stage T3a from original biopsy have anything to do with the staging now? Right. It totally does not feel right to do nothing. It's been a month of high anxiety and worry and running every possible scenario through our heads… and now it's just dropped. I need to decompress.

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- October 14, 2016 at 10:32 pm
And that is another question- they never gave us a clear staging or classification of his specific type of melanoma. Does the Stage T3a from original biopsy have anything to do with the staging now? Right. It totally does not feel right to do nothing. It's been a month of high anxiety and worry and running every possible scenario through our heads… and now it's just dropped. I need to decompress.

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- October 14, 2016 at 10:32 pm
And that is another question- they never gave us a clear staging or classification of his specific type of melanoma. Does the Stage T3a from original biopsy have anything to do with the staging now? Right. It totally does not feel right to do nothing. It's been a month of high anxiety and worry and running every possible scenario through our heads… and now it's just dropped. I need to decompress.

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- October 14, 2016 at 10:10 pm
Thank you for taking the time to reply to me. This has been such an emotional, anxiety filled world we have been thrown into this past month. I am curious about immunotherapy, and any other testing or scans going forward. We are currently in the process of seeking out a second opinion of any treatment for Ross going forward now that surgery is done and he has clear margins and no spread to lymph nodes. The answer may be no "no further treatment" but we feel better hearing that from someone that specializes in ped melanoma- he is his current's Dr.'s 3rd case in 10 years! Sending love and prayers to you and your whole family as you fight too!
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- October 14, 2016 at 10:10 pm
Thank you for taking the time to reply to me. This has been such an emotional, anxiety filled world we have been thrown into this past month. I am curious about immunotherapy, and any other testing or scans going forward. We are currently in the process of seeking out a second opinion of any treatment for Ross going forward now that surgery is done and he has clear margins and no spread to lymph nodes. The answer may be no "no further treatment" but we feel better hearing that from someone that specializes in ped melanoma- he is his current's Dr.'s 3rd case in 10 years! Sending love and prayers to you and your whole family as you fight too!
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- October 14, 2016 at 10:10 pm
Thank you for taking the time to reply to me. This has been such an emotional, anxiety filled world we have been thrown into this past month. I am curious about immunotherapy, and any other testing or scans going forward. We are currently in the process of seeking out a second opinion of any treatment for Ross going forward now that surgery is done and he has clear margins and no spread to lymph nodes. The answer may be no "no further treatment" but we feel better hearing that from someone that specializes in ped melanoma- he is his current's Dr.'s 3rd case in 10 years! Sending love and prayers to you and your whole family as you fight too!
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