Melanoma Research Foundation | Rncab218 | Activity https://forum.melanoma.org/user/rncab218/activity/ Activity feed for Rncab218. Sat, 04 Apr 2026 09:52:58 -0400 https://buddypress.org/?v= en-US 30 hourly 2 1c504b2a6a3b974e9bd2a0e229f3b18c Rncab218 started the topic Second recurrence after 9 years NED. 3C in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/second-recurrence-after-9-years-ned-3c/ Mon, 28 Nov 2022 16:07:13 -0500 Was NED for 9 years, stage 3C unknown primary. Had node removed near original 2 and was melanoma. Did 6 months opdivo but stopped due to side effects. 3 years later had another node removed, same arm, near the elbow. Wide excision not clean margin. Surgeon wants to do further excision under anesthesia. Waiting to hear when to get PET scan. Last…Read more

]]> 66eb695d2631f07c59fa8b95f0bea7fa Rncab218 started the topic Psoriatic arthritis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/psoriatic-arthritis/ Thu, 09 Jan 2020 21:17:35 -0500 After 9 years NED I had a recurrence . One lymph node posture. Still stage 3C, no known primary BRAF negative . Did five rounds nivolumab but had to stop due to severe diarrhea and joint pain. Steroids for one month helped but one year later joint pain remained. Rheumatologist confirmed psoriatic arthritis. Most likely from treatment as I do…Read more

]]> ee5b97a0ceada4ebd567ce449523f2ec Rncab218 replied to the topic Length of immuntherapy side effects in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/length-of-immuntherapy-side-effects/#post-246699 Tue, 16 Apr 2019 13:43:31 -0400 I had to stop nivo treatment after four treatments due to severe diarrhea, muscle and joint pain and itching. I was tapered on prednisone for three weeks.  Last treatment was December. I am still having side effects especially joint pain in my hands mostly and living in Motrin.  I am told the medication works in your body for six months.  I hope…Read more

]]> 3b3eaa3226cd854c56c774c2eb356887 Rncab218 started the topic Nivo side effects in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/nivo-side-effects/ Thu, 18 Oct 2018 14:23:15 -0400 Hi 
had a local recurrence in lymph node after 9 years NED with stage 3C.  Decided to do monthly nivo for one year.  I  felt a little tired after first treatment but after two weeks developed pretty bad diarrhea.  Doctor postponed second infusion and prescribed five days steroids    Had second infusion last week and now starting diarrhea again…Read more

]]> 3668e62682c25c8b163672004d67173d Rncab218 started the topic Nivo question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/nivo-question/ Tue, 14 Aug 2018 14:33:15 -0400 Hi,
posted a month ago when I was diagnosed with a local recurrence of melanome 9 years after initial diagnosis.  Had unknown primary, two large lymph nodes removed.  Did leukine for ten months, no further treatment.  Now have had local recurrence, left arm and still cannot decide if I should do Nivo, tested BRAF negative.  Spoke with three…Read more

]]> fabc0dbd4d5fd38492243b51dcb4b1c7 Rncab218 started the topic PD1 for resected stage 3 melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/pd1-for-resected-stage-3-melanoma/ Mon, 11 Jun 2018 18:49:01 -0400 Hi,
It has been a long time since I was on this site.  WhenI was first diagnosed in May 2009, I was a daily visitor and received so much support here.  I was diagnosed stage 3, no known primary,two positive lymph nodes, wide excision done and 10 months of Leukine.  I was followed closley with scans for five years and last month a nodule appeared…Read more

]]> 9adfb4a5d1eade360eaa092ed8343e0c Rncab218 replied to the topic Out of Surgery, recovering quickly, in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/out-of-surgery-recovering-quickly/#post-36024 Fri, 25 Feb 2011 00:07:53 -0500 glad you are feeling well  Yes, the doctors and nurses at sloan are the best, had my surgery and treatment there and still following up every 3 months hoping we both stay NED!!  rest and take care.

]]> 9adfb4a5d1eade360eaa092ed8343e0c Rncab218 replied to the topic Out of Surgery, recovering quickly, in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/out-of-surgery-recovering-quickly/#post-35752 Fri, 25 Feb 2011 00:07:53 -0500 glad you are feeling well  Yes, the doctors and nurses at sloan are the best, had my surgery and treatment there and still following up every 3 months hoping we both stay NED!!  rest and take care.

]]> 3d00feaff148333e4d42da9f95a0247e Rncab218 replied to the topic 10 Years NED .... after lung and brain mets.. NEVER EVER GIVE UP HOPE in the forum Caregiver Community https://forum.melanoma.org/forums/topic/10-years-ned-after-lung-and-brain-mets-never-ever-give-up-hope/#post-34178 Wed, 02 Feb 2011 15:41:46 -0500 Congratulations Carole!!I read posts almost daily but dont post myself often but when i saw this i just wanted to thank you for all you do.  When i was diagnosed in may 2009., i somehow found your email online and your help got me through a very tough time.  I'm glad you are still doing well and thank you again for all your help and…Read more

]]> 3d00feaff148333e4d42da9f95a0247e Rncab218 replied to the topic 10 Years NED .... after lung and brain mets.. NEVER EVER GIVE UP HOPE in the forum Caregiver Community https://forum.melanoma.org/forums/topic/10-years-ned-after-lung-and-brain-mets-never-ever-give-up-hope/#post-33931 Wed, 02 Feb 2011 15:41:46 -0500 Congratulations Carole!!I read posts almost daily but dont post myself often but when i saw this i just wanted to thank you for all you do.  When i was diagnosed in may 2009., i somehow found your email online and your help got me through a very tough time.  I'm glad you are still doing well and thank you again for all your help and…Read more

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