Mooglide

Thank you Kyle.  I agree with getting a few opinions- there is no place that is the know all end all.  With the help of a few opinions to toss up I am hopeful I will come to peace with a new plan.  Thanks again and have a great day!

Thank you Kyle.  I agree with getting a few opinions- there is no place that is the know all end all.  With the help of a few opinions to toss up I am hopeful I will come to peace with a new plan.  Thanks again and have a great day!

Thank you Kyle.  I agree with getting a few opinions- there is no place that is the know all end all.  With the help of a few opinions to toss up I am hopeful I will come to peace with a new plan.  Thanks again and have a great day!

Ed,

Thank you!  I just finished the video and think that this may be something that could work.  I appreciate you taking the time to help!  Have a great day!

Ed,

Thank you!  I just finished the video and think that this may be something that could work.  I appreciate you taking the time to help!  Have a great day!

Ed,

Thank you!  I just finished the video and think that this may be something that could work.  I appreciate you taking the time to help!  Have a great day!

Thank you for your response Celeste.  

1. There is dead and active tumor in the area that they opened up.  It is dying, just not quickly.

2. I believe that I have an extracpaular extension.  I have not yet radiated this particular area so this is an option.  Radiation on primary site and on clavicle have both proven successful.  This tumor is quite large around 10 x 14 since the individual tumors have all grown into one. The idea of intralesional therapy such as T-Vec was shot down due to the size of the tumor.

3. I am checking into this, thank you so much for bringing it up as it was not even mentioned.  The only thing i am unsure on is if this could be used with a very large open wound on the tumor area since a tourniquet blood pressure cuff is used but I am optimistic seeing this.

4. I responded quite well to TAF/MEK for a whole year.  When the doctor told me to get off of it, I had a recurrance within 30 days.  I then got back on the medicine combination immediately after seeing the pop up and through taking the medicine there were still more small tumors that popped up on my arm (that eventually led up to the one large mass) which is why they said that I now had a resistance to it (possibly from stopping starting too much).  I have heard about people on the combinations for 5 years plus and that is part of my frustration as it was working to keep me cancer free and after listening to the doctor to get off of it I relapsed. 

5. Thank you so much for the doctor recommendations!  I am hopeful that through a second opinion I will get more hope.

Can't thank you enough for your time!  Have a great one!

Thank you for your response Celeste.  

1. There is dead and active tumor in the area that they opened up.  It is dying, just not quickly.

2. I believe that I have an extracpaular extension.  I have not yet radiated this particular area so this is an option.  Radiation on primary site and on clavicle have both proven successful.  This tumor is quite large around 10 x 14 since the individual tumors have all grown into one. The idea of intralesional therapy such as T-Vec was shot down due to the size of the tumor.

3. I am checking into this, thank you so much for bringing it up as it was not even mentioned.  The only thing i am unsure on is if this could be used with a very large open wound on the tumor area since a tourniquet blood pressure cuff is used but I am optimistic seeing this.

4. I responded quite well to TAF/MEK for a whole year.  When the doctor told me to get off of it, I had a recurrance within 30 days.  I then got back on the medicine combination immediately after seeing the pop up and through taking the medicine there were still more small tumors that popped up on my arm (that eventually led up to the one large mass) which is why they said that I now had a resistance to it (possibly from stopping starting too much).  I have heard about people on the combinations for 5 years plus and that is part of my frustration as it was working to keep me cancer free and after listening to the doctor to get off of it I relapsed. 

5. Thank you so much for the doctor recommendations!  I am hopeful that through a second opinion I will get more hope.

Can't thank you enough for your time!  Have a great one!

Thank you for your response Celeste.  

1. There is dead and active tumor in the area that they opened up.  It is dying, just not quickly.

2. I believe that I have an extracpaular extension.  I have not yet radiated this particular area so this is an option.  Radiation on primary site and on clavicle have both proven successful.  This tumor is quite large around 10 x 14 since the individual tumors have all grown into one. The idea of intralesional therapy such as T-Vec was shot down due to the size of the tumor.

3. I am checking into this, thank you so much for bringing it up as it was not even mentioned.  The only thing i am unsure on is if this could be used with a very large open wound on the tumor area since a tourniquet blood pressure cuff is used but I am optimistic seeing this.

4. I responded quite well to TAF/MEK for a whole year.  When the doctor told me to get off of it, I had a recurrance within 30 days.  I then got back on the medicine combination immediately after seeing the pop up and through taking the medicine there were still more small tumors that popped up on my arm (that eventually led up to the one large mass) which is why they said that I now had a resistance to it (possibly from stopping starting too much).  I have heard about people on the combinations for 5 years plus and that is part of my frustration as it was working to keep me cancer free and after listening to the doctor to get off of it I relapsed. 

5. Thank you so much for the doctor recommendations!  I am hopeful that through a second opinion I will get more hope.

Can't thank you enough for your time!  Have a great one!