The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Mikers

Forum Replies Created

Viewing 8 reply threads
  • Replies
      Mikers
      Participant

      Dear Rob,
      I'm glad to heae that process has stabilezed and you are continuing fighting!

      Could you please contact me personally to share experience? How can I mail you?

      Mikers
      Participant

      Dear Rob,
      I'm glad to heae that process has stabilezed and you are continuing fighting!

      Could you please contact me personally to share experience? How can I mail you?

      Mikers
      Participant

      Dear Rob,
      I'm glad to heae that process has stabilezed and you are continuing fighting!

      Could you please contact me personally to share experience? How can I mail you?

      Mikers
      Participant

      Dear Cathy, does your doctor see advantage of using other type of targeted combo instead of previous?

      Mikers
      Participant

      Dear Cathy, does your doctor see advantage of using other type of targeted combo instead of previous?

      Mikers
      Participant

      Dear Cathy, does your doctor see advantage of using other type of targeted combo instead of previous?

      Mikers
      Participant

      Dear Rob, 

      your situation is quite similar to mine. 
      Sorry I didnt' understand completely why don't you try intrathecal IL-2? They do it well in MD Anderson (prof. Glitza). 
      Also is Adriana Braf positive? Why not to rechallenge braf+mek?
      Do you know any clinical trials which you can apply with LMD?

      Best wishes, Mike

      Mikers
      Participant

      Dear Rob, 

      your situation is quite similar to mine. 
      Sorry I didnt' understand completely why don't you try intrathecal IL-2? They do it well in MD Anderson (prof. Glitza). 
      Also is Adriana Braf positive? Why not to rechallenge braf+mek?
      Do you know any clinical trials which you can apply with LMD?

      Best wishes, Mike

      Mikers
      Participant

      Dear Rob, 

      your situation is quite similar to mine. 
      Sorry I didnt' understand completely why don't you try intrathecal IL-2? They do it well in MD Anderson (prof. Glitza). 
      Also is Adriana Braf positive? Why not to rechallenge braf+mek?
      Do you know any clinical trials which you can apply with LMD?

      Best wishes, Mike

      Mikers
      Participant

      Deb, thank you very much. 

      So far none of the emetics working (nor ondacetron nor metoclopramid). Also have tried haloperidol. So thinking of steroids but don't want much contradiction with current nivolumab. 

      Mikers
      Participant

      Deb, thank you very much. 

      So far none of the emetics working (nor ondacetron nor metoclopramid). Also have tried haloperidol. So thinking of steroids but don't want much contradiction with current nivolumab. 

      Mikers
      Participant

      Deb, thank you very much. 

      So far none of the emetics working (nor ondacetron nor metoclopramid). Also have tried haloperidol. So thinking of steroids but don't want much contradiction with current nivolumab. 

      Mikers
      Participant

      Hey, Rob, 

      I was going to contact you via email but seems that you didn't get mine message. Would you be able to mail me to the michael.alex.rus@gmail.com? Thank you!

      Mikers
      Participant

      Hey, Rob, 

      I was going to contact you via email but seems that you didn't get mine message. Would you be able to mail me to the michael.alex.rus@gmail.com? Thank you!

      Mikers
      Participant

      Hey, Rob, 

      I was going to contact you via email but seems that you didn't get mine message. Would you be able to mail me to the michael.alex.rus@gmail.com? Thank you!

Viewing 8 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.