Melanoma Research Foundation | maxandersonjr | Activity https://forum.melanoma.org/user/maxanderson/activity/ Activity feed for maxandersonjr. Mon, 20 Apr 2026 17:58:12 -0400 https://buddypress.org/?v= en-US 30 hourly 2 5df06a175be33896aa9617e577b51001 maxandersonjr replied to the topic Questions about Stage 4 treatment options in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/questions-about-stage-4-treatment-options/#post-276540 Tue, 29 Mar 2022 15:49:15 -0400 I’m so sorry about your loss. This is so hard for the families too. My wife is our “North Star” and the thought of losing her levels me. I don’t think she’s allowed herself to consider the prognosis so she’s living her life much as she did before the diagnosis. But she just started having this anxiety that she’s doing something wrong and that…Read more

]]> 69e7f2574b452cefc6e6f39e610f8e00 maxandersonjr replied to the topic Newbie here! Braftovi/Mektovi Side Effect Question - plus some general stuff in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newbie-here-braftovi-mektovi-side-effect-question-plus-some-general-stuff/#post-276482 Tue, 15 Mar 2022 21:59:01 -0400 Thanks to all of the thoughtful and informative responses. The vision thing is still there but hasn’t gotten any worse and she says it’s most just very dry eyes which make her vision slightly blurry. Nothing she can’t tolerate thus far. She was almost completely off her Prednisone for her colitis but as soon as she tapered from 5mg to zero, she…Read more

]]> 48c5d2c78f6817d4c72f24799f0ec9c7 maxandersonjr replied to the topic Questions about Stage 4 treatment options in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/questions-about-stage-4-treatment-options/#post-276433 Sun, 06 Mar 2022 21:23:58 -0500 Thank you all! I think the biggest ? mark is what we do when the targeted therapy stops working (assuming it works). Options may change in the interim but with immunotherapy being the one with the greatest durability, we just hope that her mixed response to her lone yervoy/Opdivo treatment doesn’t mean that immunotherapy can’t/won’t work down…Read more

]]> c55752379766c966578aa5f281d4e2b4 maxandersonjr started the topic Questions about Stage 4 treatment options in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/questions-about-stage-4-treatment-options/ Sun, 06 Mar 2022 02:51:29 -0500 I don’t mean to bombard this wonderful forum with questions but the more I’ve read here the more I realize how little I know. The knowledge here is impressive. More than anything, I want to do everything I can to help my wife.

Is the standard of care and collaboration between hospitals such that treatments are all pretty much the same reg…Read more

]]> e6277d83892b606f92a14c8f3366f104 maxandersonjr replied to the topic Battling Metastatic Melanoma is a Lonely Experience in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/battling-metastatic-melanoma-is-a-lonely-experience/#post-276426 Sun, 06 Mar 2022 02:22:52 -0500 This is very similar to my wife’s story. She also had stage 1b 12 years ago and we thought melanoma was behind until she had swollen lymph nodes and a lump on her breast in November of 2021. She started the 12-pill Braf/Mek combo. What does “neo adjunct” mean? Is that something additional?

Sorry for the dumb question. I’m trying to learn m…Read more

]]> f303f31ea9575fadca243a3241e2e2a4 maxandersonjr replied to the topic Newbie here! Braftovi/Mektovi Side Effect Question - plus some general stuff in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newbie-here-braftovi-mektovi-side-effect-question-plus-some-general-stuff/#post-276425 Sun, 06 Mar 2022 01:27:16 -0500 Thank you so much for responding and I’m glad to hear you are doing well! Makes me feel a bit better. When I read vision loss was a side effect, I was a little freaked out.

I guess I shouldn’t characterize as a Hail Mary but I guess I just feel like immunotherapy offered best hope. Still wondering about TIL as I’d read that it can help those…Read more

]]> 419eca9daff55147c1c0bd861a03fc41 maxandersonjr replied to the topic Atezolizumab in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/atezolizumab/#post-276423 Sun, 06 Mar 2022 00:53:44 -0500 Is it possible for Atezo to work if Opdivo didn’t? I can’t seem to find any answers online and wondering if someone here knows.

]]> f516f29164eff882405d0037f8ef8c1c maxandersonjr started the topic Newbie here! Braftovi/Mektovi Side Effect Question - plus some general stuff in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newbie-here-braftovi-mektovi-side-effect-question-plus-some-general-stuff/ Sun, 06 Mar 2022 00:12:12 -0500 Hello – I’ve resisted going online and doing any research because frankly I’m terrified. My 49-year old wife was diagnosed with stage 4 melanoma in late November, 2021. She had 7 tumors – all soft tissue except for one in her lung. We are getting treatment at the University of Chicago. She received her first (only) immunotherapy treatment…Read more

]]> 93351b84eeed9b0fc93dd4380a63fe04 maxandersonjr became a registered member https://forum.melanoma.org/activity/p/14867/ Sat, 05 Mar 2022 23:48:48 -0500 0