Melanoma Research Foundation | marta010 | Activity https://forum.melanoma.org/user/marta010/activity/ Activity feed for marta010. Fri, 03 Apr 2026 18:39:38 -0400 https://buddypress.org/?v= en-US 30 hourly 2 01b49a138d9a63d607ac239f496215e4 marta010 started the topic Stage 3 Treatment Options in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stage-3-treatment-options/ Thu, 29 Jun 2023 18:13:26 -0400 Hi – I’ve been a member of this forum since 2012 when my husband was diagnosed with Stage 4 melanoma – feel like I’m pretty well versed on treatment options based on his experiences. My dad was just diagnosed with Stage 3 melanoma and now I’m feeling a little underprepared to help guide him since we skipped right over this stage and the melanoma…Read more

]]> 25ea2296ad75cb6ca5aafbd8080330fa marta010 replied to the topic Tafinlar fever in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/tafinlar-fever/#post-278826 Thu, 29 Jun 2023 17:58:39 -0400 Sorry to hear about the latest development in the brain. Re your question on fevers, initially my husband was on reduced dose (75%) of Tafinlar due to fevers and eventually increased to full dose. He continues to have a very positive response in his body even at the lower dose. Like your wife, he also developed brain mets while on Tafinlar.…Read more

]]> c489a475b4101b254e047abca246913b marta010 replied to the topic Brain mets success stories in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-mets-success-stories/#post-278511 Wed, 12 Apr 2023 19:17:12 -0400 Hi – my husband was diagnosed in March 2012 with Stage 4 melanoma in his brain and cervical lymph nodes. 11 years, 8 gamma knife procedures, 5 craniotomies later, he’s still here! It has not been easy but he perseveres. His treatment started with Zelboraf and radiation to the neck mets, followed by Tafinlar/MEK (still on Tafinlar 10 years…Read more

]]> 5f6243b444c3974bd91ade3e6b9467a1 marta010 replied to the topic Seizure and brain necrosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/seizure-and-brain-necrosis/#post-277039 Wed, 20 Jul 2022 23:50:53 -0400 Hi Jenn – my husband no longer drives due to the vision deficit caused by the brain tumor and has also developed macular degeneration in one eye. Unfortunately, he was unable to return to work about 4 months into his treatment and has been on long term disability since shortly after his diagnosis. He has had a host of treatment related side…Read more

]]> 663c418e10a04d4073ff1aea623561f2 marta010 replied to the topic Some more necrosis questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/some-more-necrosis-questions/#post-277034 Wed, 20 Jul 2022 17:40:12 -0400 Hi Judi – my husband is in year 10 of fighting brain mets. His neuro often has a different take on the scans than the radiologist does. It’s also difficult in some cases to accurately distinguish a melanoma tumor from necrosis. We’ve been watching an area (uncertain whether tumor or necrosis) in my husband’s brain for about a year now and as long…Read more

]]> 1859ffa67729c5b4bb13c690cfdc6095 marta010 replied to the topic Seizure and brain necrosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/seizure-and-brain-necrosis/#post-277033 Wed, 20 Jul 2022 17:26:50 -0400 Hi Jenn – my husband had a similar experience in May. Initially diagnoesd in 2012, he has a history of brain mets treated both by gamma knife(8) and surgery(5). The most recent brain hiccup in May also involved a seizure followed by MRI which showed a new mass in a previously treated (both gamma knife and craniotomy in 2016). Since this area…Read more

]]> 766744e8b7eaa8146610565832979d8d marta010 replied to the topic 98th dose of Nivolumab in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/98th-dose-of-nivolumab/#post-276137 Thu, 23 Dec 2021 01:10:38 -0500 Hi Gregg- my husband has his 50th Keytruda infusion at the end of January. He’s also been on Dabrafenib since 2014. Main side effects have been fatigue,muscle/joint aches and pains and recurrent adrenal insufficiency. Cancer status is pretty clear in his body but watching a stubborn area in his brain which his Neuro is pretty sure is necrosis f…Read more

]]> bf14b01a106c9fc7cc657e8edb73f4f8 marta010 replied to the topic Brain met stats are so horrific (>3) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-met-stats-are-so-horrific-3/#post-275934 Fri, 05 Nov 2021 11:24:53 -0400 Hi Kathy- my husband has been dealing with brain mets since his initial diagnosis in 2012. Numerous gamma knife treatments and brain surgeries over the years and he still fights on. He has one pesky area that just won’t quit acting up – hope his mri next week is more definitive on whether it’s tumor or necrosis.
The remainder of his body is tum…Read more

]]> 7e6e94609e8817935cf1c528cc60556b marta010 replied to the topic Potential Brain mets - terrified in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/potential-brain-mets-terrified/#post-275618 Tue, 07 Sep 2021 11:48:56 -0400 Hi Stefan – so sorry you and your mother are going through this.  My husband was diagnosed 9 1/2 years ago with brain mets, which have been treated and are still popping up so don’t lose faith.  You didn’t mention if she is currently on any treatment for her other tumors – both immunotherapy and Braf therapies can cause side effects, including v…Read more

]]> b82a6f775335ce6be74b2a70ede833a3 marta010 replied to the topic Mom of Jake - for the old friends here in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/mom-of-jake-for-the-old-friends-here/#post-274750 Sat, 22 May 2021 12:34:26 -0400 Dear Kerri – so sorry to see your news of Jake.  I’ve often looked for updates over the years and, like others, had hoped that Jake was enjoying a normal, cancer free life.  It breaks my heart that he was cheated by this horrible disease.  May your  memories of the happy days bring you comfort.  Take care.

Ann

]]> bf3ea7852c93161b899d5220e304cfc9 marta010 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274269 Mon, 22 Feb 2021 17:06:21 -0500 Hi Sandy – just wanted to share my husband’s experience with brain mets and treatments. He was initially diagnosed in 2012 with mets to neck lymph nodes and brain. Over the past 9 years, has had 7 gamma knife procedures and 4 craniotomies. Gamma knife experience has been pretty consistent with what others have shared – primary discomfort has…Read more

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