LizaC

Thank you Celeste for your kind words, it means a lot to be part of an smazingly brave and kind community. Ive been reading posts on this site for 2 years. Gaining strength l, hope and knowledge.

Melissa knows Im here for her, always have been. I’ve got good supports here and am now utilising them.. xx

Thank you Celeste for your kind words, it means a lot to be part of an smazingly brave and kind community. Ive been reading posts on this site for 2 years. Gaining strength l, hope and knowledge.

Melissa knows Im here for her, always have been. I’ve got good supports here and am now utilising them.. xx

Thank you Celeste for your kind words, it means a lot to be part of an smazingly brave and kind community. Ive been reading posts on this site for 2 years. Gaining strength l, hope and knowledge.

Melissa knows Im here for her, always have been. I’ve got good supports here and am now utilising them.. xx

Thanks Celeste for that info..

You’re right about Australia and Melanoma,though we were shocked when diagnosed with melanoma because no primary was found, never has been (she was originally diagnosed with breast cancer in August 2014 after finding a minute lump in her breast. Biopsy/lump was way to small to analyse..cut a long story short, diagnosed with Melanoma December 2014, stage 4. We found out she was braf + , 12 great months with brafi, 98% shrinkage and life became relatively normal again, I took a year off and we had a great time together, ..approx 12 months later, resistance, bam!. Keytruda saved her life in January,got rid of all the melanoma that went into her bone marrow..stabilised other areas but then got resistant.. back on brafi April till 3 weeks ago, (a mixed response) still progression in liver, various other parts, serts sphere internal radiation on life 4 weeks ago, last 2 weeks radiation, including this morning on femur.. surgery 9 weeks ago..including hysterectomy.. Celeste, we’ve done as much as we can, its like trying to put out spot fires.. IPI is it. Our Oncologist (Dr Kichendasse) said that if she’s a responder, we may see changes next week or 2. We’ll see. I just keep praying.. u just never know..

I still find it hard to get my head around that no primary has ever found. finding the primary. Anyway, I’m rambling.. Ill check out Dr Thompson, I’ll call his office nothing to lose..

Kind Regards,
Liza

Thanks Celeste for that info..

You’re right about Australia and Melanoma,though we were shocked when diagnosed with melanoma because no primary was found, never has been (she was originally diagnosed with breast cancer in August 2014 after finding a minute lump in her breast. Biopsy/lump was way to small to analyse..cut a long story short, diagnosed with Melanoma December 2014, stage 4. We found out she was braf + , 12 great months with brafi, 98% shrinkage and life became relatively normal again, I took a year off and we had a great time together, ..approx 12 months later, resistance, bam!. Keytruda saved her life in January,got rid of all the melanoma that went into her bone marrow..stabilised other areas but then got resistant.. back on brafi April till 3 weeks ago, (a mixed response) still progression in liver, various other parts, serts sphere internal radiation on life 4 weeks ago, last 2 weeks radiation, including this morning on femur.. surgery 9 weeks ago..including hysterectomy.. Celeste, we’ve done as much as we can, its like trying to put out spot fires.. IPI is it. Our Oncologist (Dr Kichendasse) said that if she’s a responder, we may see changes next week or 2. We’ll see. I just keep praying.. u just never know..

I still find it hard to get my head around that no primary has ever found. finding the primary. Anyway, I’m rambling.. Ill check out Dr Thompson, I’ll call his office nothing to lose..

Kind Regards,
Liza

Thanks Celeste for that info..

You’re right about Australia and Melanoma,though we were shocked when diagnosed with melanoma because no primary was found, never has been (she was originally diagnosed with breast cancer in August 2014 after finding a minute lump in her breast. Biopsy/lump was way to small to analyse..cut a long story short, diagnosed with Melanoma December 2014, stage 4. We found out she was braf + , 12 great months with brafi, 98% shrinkage and life became relatively normal again, I took a year off and we had a great time together, ..approx 12 months later, resistance, bam!. Keytruda saved her life in January,got rid of all the melanoma that went into her bone marrow..stabilised other areas but then got resistant.. back on brafi April till 3 weeks ago, (a mixed response) still progression in liver, various other parts, serts sphere internal radiation on life 4 weeks ago, last 2 weeks radiation, including this morning on femur.. surgery 9 weeks ago..including hysterectomy.. Celeste, we’ve done as much as we can, its like trying to put out spot fires.. IPI is it. Our Oncologist (Dr Kichendasse) said that if she’s a responder, we may see changes next week or 2. We’ll see. I just keep praying.. u just never know..

I still find it hard to get my head around that no primary has ever found. finding the primary. Anyway, I’m rambling.. Ill check out Dr Thompson, I’ll call his office nothing to lose..

Kind Regards,
Liza

Thanks Celeste for that info..

You’re right about Australia and Melanoma,though we were shocked when diagnosed with melanoma because no primary was found, never has been (she was originally diagnosed with breast cancer in August 2014 after finding a minute lump in her breast. Biopsy/lump was way to small to analyse..cut a long story short, diagnosed with Melanoma December 2014, stage 4. We found out she was braf + , 12 great months with brafi, 98% shrinkage and life became relatively normal again, I took a year off and we had a great time together, ..approx 12 months later, resistance, bam!.

I still find it hard to get my head around that no primary has ever found. finding the primary. Anyway, I’m rambling.. Ill check out Dr Thompson, I’ll call his office nothing to lose..

Kind Regards,
Liza

Thanks Celeste for that info..

You’re right about Australia and Melanoma,though we were shocked when diagnosed with melanoma because no primary was found, never has been (she was originally diagnosed with breast cancer in August 2014 after finding a minute lump in her breast. Biopsy/lump was way to small to analyse..cut a long story short, diagnosed with Melanoma December 2014, stage 4. We found out she was braf + , 12 great months with brafi, 98% shrinkage and life became relatively normal again, I took a year off and we had a great time together, ..approx 12 months later, resistance, bam!.

I still find it hard to get my head around that no primary has ever found. finding the primary. Anyway, I’m rambling.. Ill check out Dr Thompson, I’ll call his office nothing to lose..

Kind Regards,
Liza

Thanks Celeste for that info..

You’re right about Australia and Melanoma,though we were shocked when diagnosed with melanoma because no primary was found, never has been (she was originally diagnosed with breast cancer in August 2014 after finding a minute lump in her breast. Biopsy/lump was way to small to analyse..cut a long story short, diagnosed with Melanoma December 2014, stage 4. We found out she was braf + , 12 great months with brafi, 98% shrinkage and life became relatively normal again, I took a year off and we had a great time together, ..approx 12 months later, resistance, bam!.

I still find it hard to get my head around that no primary has ever found. finding the primary. Anyway, I’m rambling.. Ill check out Dr Thompson, I’ll call his office nothing to lose..

Kind Regards,
Liza

Hi Tim
Youre right, but she didnt fit the strict criteria..
She’s too weak now, we just want her pain management sorted out so she’s not so ‘out of it’.. quality of life and praying the IPI kicks in…

Hi Tim
Youre right, but she didnt fit the strict criteria..
She’s too weak now, we just want her pain management sorted out so she’s not so ‘out of it’.. quality of life and praying the IPI kicks in…

Hi Tim
Youre right, but she didnt fit the strict criteria..
She’s too weak now, we just want her pain management sorted out so she’s not so ‘out of it’.. quality of life and praying the IPI kicks in…

Thank you Celeste. First night in the hospice, its nearly 3am and it feels surreal that its come to this. The cancer is continuing to spread, even from 3 days ago..feeling the bumps on her stomach. All I can do is be here with her, love and support her. I still have hope, be it smaller than yesterday that the IPI may kick in, who knows..

Liza

Thank you Celeste. First night in the hospice, its nearly 3am and it feels surreal that its come to this. The cancer is continuing to spread, even from 3 days ago..feeling the bumps on her stomach. All I can do is be here with her, love and support her. I still have hope, be it smaller than yesterday that the IPI may kick in, who knows..

Liza

Thank you Celeste. First night in the hospice, its nearly 3am and it feels surreal that its come to this. The cancer is continuing to spread, even from 3 days ago..feeling the bumps on her stomach. All I can do is be here with her, love and support her. I still have hope, be it smaller than yesterday that the IPI may kick in, who knows..

Liza