Hopeful29

Denise,
I’m so sorry that you have to go through this as well. Thank you for your thoughts and words of encouragement.

Eva,
Thank you so much for your response.
Her last yervoy is next Friday and, as of today, the Dr. Agreed that if she continues to have extreme pain, they will do a CT scan before all of the recommended weeks have past to see if they can help her. I’ve read the WBR combined with yervoy can positively effect all rumors in your body, not just the brain. I truly hope that this will be the case for her and for you.
You’re right-yervoy does have the tendency to cause things to flare up before they get better so that’s a good hypothesis. I like it.
It sounds like you’re making progress in your treatment and I will pray that you continue to improve.
Pd1 sounds like the next best thing so we are trying to stabilize her brain tumors and get that going.
Wishing you all of the best.

Thank you so much for your thoughts. I’m going to keep being positive because, yes, the pain etc. could be caused by many things, including gas. She’s had issues moving her bowels, etc.
all the best to you.

Denise,

Thank you so much. This information is most helpful.  It's been very frustrating since my mom started yervoy.  Her Dr. told us that we would not be able to do anything more until 3 weeks after her last treatment (next Friday).  We were told that we needed to wait until then to see if the Yervoy worked or not and then to go to the next step.  I agree that once she starts all 3 treatments and if her brain tumors stabilize, we should push to get her into the anti Pd1 trial.  I don't like how they are making us wait it out to see the results of other treatment first, causing a potential for additional issues. 

I hope all the best for you. 

Denise,

Thank you so much. This information is most helpful.  It's been very frustrating since my mom started yervoy.  Her Dr. told us that we would not be able to do anything more until 3 weeks after her last treatment (next Friday).  We were told that we needed to wait until then to see if the Yervoy worked or not and then to go to the next step.  I agree that once she starts all 3 treatments and if her brain tumors stabilize, we should push to get her into the anti Pd1 trial.  I don't like how they are making us wait it out to see the results of other treatment first, causing a potential for additional issues. 

I hope all the best for you. 

Denise,

Thank you so much. This information is most helpful.  It's been very frustrating since my mom started yervoy.  Her Dr. told us that we would not be able to do anything more until 3 weeks after her last treatment (next Friday).  We were told that we needed to wait until then to see if the Yervoy worked or not and then to go to the next step.  I agree that once she starts all 3 treatments and if her brain tumors stabilize, we should push to get her into the anti Pd1 trial.  I don't like how they are making us wait it out to see the results of other treatment first, causing a potential for additional issues. 

I hope all the best for you. 

Hi Donna,

Thanks for your reply.  She's currently on Ipi/WBR so we're hoping that this may yeild some positive results in it self but the Dr. said that she could take the Zelboraf immediately since she just saw that she has the right gene for it.    This would mean that she's doing all 3 simultaneously.  I'm hoping that she will get better/feel better soon.  I'll keep updating this as we continue the journey. 

I wish you the best.

Hi Donna,

Thanks for your reply.  She's currently on Ipi/WBR so we're hoping that this may yeild some positive results in it self but the Dr. said that she could take the Zelboraf immediately since she just saw that she has the right gene for it.    This would mean that she's doing all 3 simultaneously.  I'm hoping that she will get better/feel better soon.  I'll keep updating this as we continue the journey. 

I wish you the best.

Hi Donna,

Thanks for your reply.  She's currently on Ipi/WBR so we're hoping that this may yeild some positive results in it self but the Dr. said that she could take the Zelboraf immediately since she just saw that she has the right gene for it.    This would mean that she's doing all 3 simultaneously.  I'm hoping that she will get better/feel better soon.  I'll keep updating this as we continue the journey. 

I wish you the best.

Denise,
I’m so sorry that you have to go through this as well. Thank you for your thoughts and words of encouragement.

Denise,
I’m so sorry that you have to go through this as well. Thank you for your thoughts and words of encouragement.

Eva,
Thank you so much for your response.
Her last yervoy is next Friday and, as of today, the Dr. Agreed that if she continues to have extreme pain, they will do a CT scan before all of the recommended weeks have past to see if they can help her. I’ve read the WBR combined with yervoy can positively effect all rumors in your body, not just the brain. I truly hope that this will be the case for her and for you.
You’re right-yervoy does have the tendency to cause things to flare up before they get better so that’s a good hypothesis. I like it.
It sounds like you’re making progress in your treatment and I will pray that you continue to improve.
Pd1 sounds like the next best thing so we are trying to stabilize her brain tumors and get that going.
Wishing you all of the best.

Eva,
Thank you so much for your response.
Her last yervoy is next Friday and, as of today, the Dr. Agreed that if she continues to have extreme pain, they will do a CT scan before all of the recommended weeks have past to see if they can help her. I’ve read the WBR combined with yervoy can positively effect all rumors in your body, not just the brain. I truly hope that this will be the case for her and for you.
You’re right-yervoy does have the tendency to cause things to flare up before they get better so that’s a good hypothesis. I like it.
It sounds like you’re making progress in your treatment and I will pray that you continue to improve.
Pd1 sounds like the next best thing so we are trying to stabilize her brain tumors and get that going.
Wishing you all of the best.

Thank you so much for your thoughts. I’m going to keep being positive because, yes, the pain etc. could be caused by many things, including gas. She’s had issues moving her bowels, etc.
all the best to you.

Thank you so much for your thoughts. I’m going to keep being positive because, yes, the pain etc. could be caused by many things, including gas. She’s had issues moving her bowels, etc.
all the best to you.