Forum Replies Created
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- September 22, 2011 at 9:31 am
Hi Guys!
My mother is a Stage 4 melanoma patient since 2009.
She has mets in Liver (2) and brain (1 burned with gamma knife).
She had in the past years DTC chemotherapy, Fotemustine and Gamma Knife (Brain).
She started 3 months ago with Steroids (32 drops a day) to control fever caused by melanoma.
Anyway, now she's in her 3rd week of Zelboraf (Vemurafenib) treatment.
Some considerations:
– almost suddenly, pain in the liver was disappeared
– a little met near anus quite disappeared (before it was touchable, now she can say it's 80% less than before)
– Side effects till now are: Bumps all over body, let's say 10 (under the skin, little pain, red…they go away slowly in 3-4 days). Redness in the eyes, pain at the bottom of feets. It's 3 days she's little fever 37°C that starts in the late afternoon (doctors sayd could be because of zelboraf…maybe it's because of melanoma, but i don't know…).
Someone can report similar things? We'll have doctor's check up the 3rd of october. I'll keep u informed.
Someone have fever using zelboraf?
Thank u guys and keep on fighting!
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- September 22, 2011 at 9:31 am
Hi Guys!
My mother is a Stage 4 melanoma patient since 2009.
She has mets in Liver (2) and brain (1 burned with gamma knife).
She had in the past years DTC chemotherapy, Fotemustine and Gamma Knife (Brain).
She started 3 months ago with Steroids (32 drops a day) to control fever caused by melanoma.
Anyway, now she's in her 3rd week of Zelboraf (Vemurafenib) treatment.
Some considerations:
– almost suddenly, pain in the liver was disappeared
– a little met near anus quite disappeared (before it was touchable, now she can say it's 80% less than before)
– Side effects till now are: Bumps all over body, let's say 10 (under the skin, little pain, red…they go away slowly in 3-4 days). Redness in the eyes, pain at the bottom of feets. It's 3 days she's little fever 37°C that starts in the late afternoon (doctors sayd could be because of zelboraf…maybe it's because of melanoma, but i don't know…).
Someone can report similar things? We'll have doctor's check up the 3rd of october. I'll keep u informed.
Someone have fever using zelboraf?
Thank u guys and keep on fighting!
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- September 27, 2011 at 4:43 pm
Dunno what to think…
Only 10 drops of steroids and the fever is gone. So is the joint pain.
Maybe weaned too fast?
Meanwhile, thanx to God, no more liver pain, good liver levels and the little bump she had near anus completely disappeared.
Hope this drug is working, but it seems to.
🙂
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- September 27, 2011 at 4:43 pm
Dunno what to think…
Only 10 drops of steroids and the fever is gone. So is the joint pain.
Maybe weaned too fast?
Meanwhile, thanx to God, no more liver pain, good liver levels and the little bump she had near anus completely disappeared.
Hope this drug is working, but it seems to.
🙂
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- September 23, 2011 at 3:59 pm
rmbuggirl,
so fast, so precious! THANK U VERY VERY MUCH for your reply! Effectively, she took 2-3 months of cortisone and then just…stopped it scaling in 10-14 days…maybe too fast.
Thank u very much again and good luck to You girl!
I'll keep u all informed about my mom's therapy.
🙂 Cheers.
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- September 23, 2011 at 3:59 pm
rmbuggirl,
so fast, so precious! THANK U VERY VERY MUCH for your reply! Effectively, she took 2-3 months of cortisone and then just…stopped it scaling in 10-14 days…maybe too fast.
Thank u very much again and good luck to You girl!
I'll keep u all informed about my mom's therapy.
🙂 Cheers.
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- September 23, 2011 at 3:07 pm
Hi rmbuggirl,
thank u for your reply!
Well, my mom had pain in the liver and…it is completly gone after one or two days of zelboraf.
Before she took steroids to fight fever and doctors said to stop steroids suddenly because she was starting zelboraf.
5-6 days without fever and then…fever again. I was guessing if this is fever from melanoma or a simple side effect of zelboraf.
Would like to know if there's someone who had fever and join pain because of zelboraf. And how he dealed with it: with aspirine, some other medicine?
Thank u rmbuggirl, thank u all for your replies.
C'mon mom, keep goin.
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- September 23, 2011 at 3:07 pm
Hi rmbuggirl,
thank u for your reply!
Well, my mom had pain in the liver and…it is completly gone after one or two days of zelboraf.
Before she took steroids to fight fever and doctors said to stop steroids suddenly because she was starting zelboraf.
5-6 days without fever and then…fever again. I was guessing if this is fever from melanoma or a simple side effect of zelboraf.
Would like to know if there's someone who had fever and join pain because of zelboraf. And how he dealed with it: with aspirine, some other medicine?
Thank u rmbuggirl, thank u all for your replies.
C'mon mom, keep goin.