Dixie777

Hey, Everyone! I made the trek to Perlmutter Cancer Center in New York City to see Dr.Jeffrey Weber. He agreed it was time to stop Opdivo after 22 month course. Yay! I am a complete responder with clear scans after first four rounds of combo. He is great to talk to as Immunotherapy/melanoma is his specialty and he is committed to getting latest research findings out to the patient. Check out his informative videos on line. Just Google Jeffrey Weber Immunotherapy and you’ll discover a wealth of knowledge. It was fun showing my son NYC and speaking with an expert in my disease. I learned so much and now feel confident in stopping treatment. Best to all. In hope, gratitude, and joy for this day.

Hello, Everyone. Thanks for informative posts. I have been on combo tx (yervo/opdivo) for melanoma Mets to pancreas, lung, groin, and buttock subq tissue. My first scan after three months of tx was clear. Very blessed. My adrenals and thyroid blew, and I was very I’ll until this was diagnosed, but I have done well on replacement therapy. I am into my 20th month of every two weeks Opdivo tx, and am really feeling like I need to stop. I have had scans every two months for past 20 months and am worried about excessive exposure. I feel like I need to cut back on tx and scans. It’s my instincts telling me this. My oncologist wants to keep going indefinitely. I’m in need of tips on how to get honest with my doctor. I have been 100% compliant and love my doctor and nurse. But I’m in conflict. Much of research er’s speculations support my decision to back off a bit, but I know the verdict is still out. Appreciate opportunity to brainstorm. You guys are great. Best regards, hope, and gratitude for us all.

Hello, Everyone. Thanks for informative posts. I have been on combo tx (yervo/opdivo) for melanoma Mets to pancreas, lung, groin, and buttock subq tissue. My first scan after three months of tx was clear. Very blessed. My adrenals and thyroid blew, and I was very I’ll until this was diagnosed, but I have done well on replacement therapy. I am into my 20th month of every two weeks Opdivo tx, and am really feeling like I need to stop. I have had scans every two months for past 20 months and am worried about excessive exposure. I feel like I need to cut back on tx and scans. It’s my instincts telling me this. My oncologist wants to keep going indefinitely. I’m in need of tips on how to get honest with my doctor. I have been 100% compliant and love my doctor and nurse. But I’m in conflict. Much of research er’s speculations support my decision to back off a bit, but I know the verdict is still out. Appreciate opportunity to brainstorm. You guys are great. Best regards, hope, and gratitude for us all.