Connolly94

Got the results back today he is unfortunately BRAF negative.

they have given him 5 doses of radiotherapy in hope to shrink the cancer the specialist said its one of the most aggressive cases he has seen but for some reason he says that might make it weaker (no idea how that works) 

the oncologist said he has months depending on how the radiotherapy reacts, if it works they are going to try him on a oral drug 

I am just wondering if anyone is in a similar situation ? 

Got the results back today he is unfortunately BRAF negative.

they have given him 5 doses of radiotherapy in hope to shrink the cancer the specialist said its one of the most aggressive cases he has seen but for some reason he says that might make it weaker (no idea how that works) 

the oncologist said he has months depending on how the radiotherapy reacts, if it works they are going to try him on a oral drug 

I am just wondering if anyone is in a similar situation ? 

Got the results back today he is unfortunately BRAF negative.

they have given him 5 doses of radiotherapy in hope to shrink the cancer the specialist said its one of the most aggressive cases he has seen but for some reason he says that might make it weaker (no idea how that works) 

the oncologist said he has months depending on how the radiotherapy reacts, if it works they are going to try him on a oral drug 

I am just wondering if anyone is in a similar situation ? 

UPDATE……

so today we met with the specialist, they are assuming it's stage three recent scan results show no cancer in any organs which is a good sign, what we first was an infection is actually paraneoplastic syndrome which is where the body's immune system throws an attack on the cancer cells resulting in a infection this is a really rare case the specialist has only seen 3 cases where the body does this. 

We are currently waiting for Wednesday's results to see if my father is able to have bref treatment such as yervoy or zelborav if not it makes it a little more difficult and they are unsure of the next path 

Would like to thank everyone who gave me advice on this group it made it easier to understand the specialist 

UPDATE……

so today we met with the specialist, they are assuming it's stage three recent scan results show no cancer in any organs which is a good sign, what we first was an infection is actually paraneoplastic syndrome which is where the body's immune system throws an attack on the cancer cells resulting in a infection this is a really rare case the specialist has only seen 3 cases where the body does this. 

We are currently waiting for Wednesday's results to see if my father is able to have bref treatment such as yervoy or zelborav if not it makes it a little more difficult and they are unsure of the next path 

Would like to thank everyone who gave me advice on this group it made it easier to understand the specialist 

UPDATE……

so today we met with the specialist, they are assuming it's stage three recent scan results show no cancer in any organs which is a good sign, what we first was an infection is actually paraneoplastic syndrome which is where the body's immune system throws an attack on the cancer cells resulting in a infection this is a really rare case the specialist has only seen 3 cases where the body does this. 

We are currently waiting for Wednesday's results to see if my father is able to have bref treatment such as yervoy or zelborav if not it makes it a little more difficult and they are unsure of the next path 

Would like to thank everyone who gave me advice on this group it made it easier to understand the specialist 

Thanks for the reply, 

my dad is being treated at Sheffield hallamshire hospital and as far as I am aware their is a skin cancer specialist, a consultant surgeon, and a oncologist all together helping my dad. 

Alarm bells went off yesterday when they told me he had months to live and only at stage 3 aswell, and so many people on here are alive and well at stage 3 and 4

i will take a look on the website thanks for the advice 

Thanks for the reply, 

my dad is being treated at Sheffield hallamshire hospital and as far as I am aware their is a skin cancer specialist, a consultant surgeon, and a oncologist all together helping my dad. 

Alarm bells went off yesterday when they told me he had months to live and only at stage 3 aswell, and so many people on here are alive and well at stage 3 and 4

i will take a look on the website thanks for the advice 

Thanks for the reply, 

my dad is being treated at Sheffield hallamshire hospital and as far as I am aware their is a skin cancer specialist, a consultant surgeon, and a oncologist all together helping my dad. 

Alarm bells went off yesterday when they told me he had months to live and only at stage 3 aswell, and so many people on here are alive and well at stage 3 and 4

i will take a look on the website thanks for the advice 

The first post was what was believed by the medical staff if you read my posts further down it changes after meeting the specialist etc 

scans this week declared all his organs clear but he is BRAF negative so that treatment cannot work so they gave him radiotherapy in hope to shrink the cancer and if it works try an oral drug 

The first post was what was believed by the medical staff if you read my posts further down it changes after meeting the specialist etc 

scans this week declared all his organs clear but he is BRAF negative so that treatment cannot work so they gave him radiotherapy in hope to shrink the cancer and if it works try an oral drug 

The first post was what was believed by the medical staff if you read my posts further down it changes after meeting the specialist etc 

scans this week declared all his organs clear but he is BRAF negative so that treatment cannot work so they gave him radiotherapy in hope to shrink the cancer and if it works try an oral drug 

He has been diagnosed stage 3 it's not in any organs yet all scans were clear 

he has not got the BRAF gene which means he can't have that treatment 

but I'm certain I have see people on here offering treatment such as yurvoy which I belive is effective 

He has been diagnosed stage 3 it's not in any organs yet all scans were clear 

he has not got the BRAF gene which means he can't have that treatment 

but I'm certain I have see people on here offering treatment such as yurvoy which I belive is effective 

He has been diagnosed stage 3 it's not in any organs yet all scans were clear 

he has not got the BRAF gene which means he can't have that treatment 

but I'm certain I have see people on here offering treatment such as yurvoy which I belive is effective