ckoch

Sorry to hear you could have recurrence.  I had lung met a year ago and was one of the lucky ones that responded to IPI – Yervoy.  Last week's PET showed NED – one year out.

Best of luck to you

Cindy

Sorry to hear you could have recurrence.  I had lung met a year ago and was one of the lucky ones that responded to IPI – Yervoy.  Last week's PET showed NED – one year out.

Best of luck to you

Cindy

Sorry to hear you could have recurrence.  I had lung met a year ago and was one of the lucky ones that responded to IPI – Yervoy.  Last week's PET showed NED – one year out.

Best of luck to you

Cindy

Hi Michael,

I was diagnosed with a 3C lesion on my cheek in 2010 and completed the 12 month Interferon protocal (same as planned for you, 4 weeks of IV then self injections).  My experience was exactly as it was described to me.  I could feel like I had a bad flu for a year…and that was exactly how I felt.  I was extremely fatigued, couldn't sit in an un-padded chair for more than 10 minutes without back and body aches starting.  I experienced a loss of appetite and subsequent weight, body aches, headaches, dry mouth and my hair became very thin.  It completey delbilitated me for a year.  I was not able to work or perform most normal activities.  I recall craving my favoite Carrott Cake so one day decided to make it.  What would have normally took me 30-45 minutes to throw together took me 5 hours!  I would do a little then lay down then repeat! 

I discovered this site while going thru the Interferon and at that time there were quite a few people posting who were doing the same thing.  I recall that many of them had very minor side effects and were able to carry on their normal life activities.  Unfortunately, that did not happen for me but many had no issues with it and were able to carry on their normal life activities

Unfortunately, Interferon did not do the trick for me.  In January of this year my annual PET/CT showed t with two MET lesions on my left lung and I am not Stage 4B.  I asked my oncologist what the Interferon did for me and was told that it simply prolonged the MET.  I am currently on IPI with plans to PD-1 if there is no response to the IPI.

Best of luck to you

Cindy

Hi Michael,

I was diagnosed with a 3C lesion on my cheek in 2010 and completed the 12 month Interferon protocal (same as planned for you, 4 weeks of IV then self injections).  My experience was exactly as it was described to me.  I could feel like I had a bad flu for a year…and that was exactly how I felt.  I was extremely fatigued, couldn't sit in an un-padded chair for more than 10 minutes without back and body aches starting.  I experienced a loss of appetite and subsequent weight, body aches, headaches, dry mouth and my hair became very thin.  It completey delbilitated me for a year.  I was not able to work or perform most normal activities.  I recall craving my favoite Carrott Cake so one day decided to make it.  What would have normally took me 30-45 minutes to throw together took me 5 hours!  I would do a little then lay down then repeat! 

I discovered this site while going thru the Interferon and at that time there were quite a few people posting who were doing the same thing.  I recall that many of them had very minor side effects and were able to carry on their normal life activities.  Unfortunately, that did not happen for me but many had no issues with it and were able to carry on their normal life activities

Unfortunately, Interferon did not do the trick for me.  In January of this year my annual PET/CT showed t with two MET lesions on my left lung and I am not Stage 4B.  I asked my oncologist what the Interferon did for me and was told that it simply prolonged the MET.  I am currently on IPI with plans to PD-1 if there is no response to the IPI.

Best of luck to you

Cindy

Hi Michael,

I was diagnosed with a 3C lesion on my cheek in 2010 and completed the 12 month Interferon protocal (same as planned for you, 4 weeks of IV then self injections).  My experience was exactly as it was described to me.  I could feel like I had a bad flu for a year…and that was exactly how I felt.  I was extremely fatigued, couldn't sit in an un-padded chair for more than 10 minutes without back and body aches starting.  I experienced a loss of appetite and subsequent weight, body aches, headaches, dry mouth and my hair became very thin.  It completey delbilitated me for a year.  I was not able to work or perform most normal activities.  I recall craving my favoite Carrott Cake so one day decided to make it.  What would have normally took me 30-45 minutes to throw together took me 5 hours!  I would do a little then lay down then repeat! 

I discovered this site while going thru the Interferon and at that time there were quite a few people posting who were doing the same thing.  I recall that many of them had very minor side effects and were able to carry on their normal life activities.  Unfortunately, that did not happen for me but many had no issues with it and were able to carry on their normal life activities

Unfortunately, Interferon did not do the trick for me.  In January of this year my annual PET/CT showed t with two MET lesions on my left lung and I am not Stage 4B.  I asked my oncologist what the Interferon did for me and was told that it simply prolonged the MET.  I am currently on IPI with plans to PD-1 if there is no response to the IPI.

Best of luck to you

Cindy