Forum Replies Created
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- January 14, 2013 at 9:50 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
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- January 14, 2013 at 9:50 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
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- January 14, 2013 at 9:50 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-
- January 14, 2013 at 9:50 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-
- January 14, 2013 at 9:50 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-
- January 14, 2013 at 9:50 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-
- January 14, 2013 at 9:48 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-
- January 14, 2013 at 9:48 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-
- January 14, 2013 at 9:48 am
I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.
I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.
The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.
Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.
-