chermes55
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

chermes55

Forum Replies Created

Viewing 2 reply threads
1 2
  • Replies
      • January 30, 2012 at 3:37 pm
      chermes55
      Participant
      Six days and still no obvious side effects feeling good so far.
      • January 30, 2012 at 3:37 pm
      chermes55
      Participant
      Six days and still no obvious side effects feeling good so far.
      • January 30, 2012 at 3:37 pm
      chermes55
      Participant
      Six days and still no obvious side effects feeling good so far.
      • February 3, 2012 at 2:59 am
      chermes55
      Participant
      Definitely is good news, I couldn’t think of having to feel the way I did on interferon. The worst part of this disease is the lack of treatment options and almost all have severe side effects. I am really enthusiastic about this trial for the fact that if we can prove its effectiveness hopefully in the future people can maintain a somewhat normal standard of living while kicking melanomas butt.

      Cliff

      • February 3, 2012 at 2:59 am
      chermes55
      Participant
      Definitely is good news, I couldn’t think of having to feel the way I did on interferon. The worst part of this disease is the lack of treatment options and almost all have severe side effects. I am really enthusiastic about this trial for the fact that if we can prove its effectiveness hopefully in the future people can maintain a somewhat normal standard of living while kicking melanomas butt.

      Cliff

      • February 3, 2012 at 2:59 am
      chermes55
      Participant
      Definitely is good news, I couldn’t think of having to feel the way I did on interferon. The worst part of this disease is the lack of treatment options and almost all have severe side effects. I am really enthusiastic about this trial for the fact that if we can prove its effectiveness hopefully in the future people can maintain a somewhat normal standard of living while kicking melanomas butt.

      Cliff

      • February 3, 2012 at 2:55 am
      chermes55
      Participant
      Yes it will definitely be nice to break some of this cabin fever. Although I never thought I would find myself excited about going to work I actually am. Thanks for the support.
      • February 3, 2012 at 2:55 am
      chermes55
      Participant
      Yes it will definitely be nice to break some of this cabin fever. Although I never thought I would find myself excited about going to work I actually am. Thanks for the support.
      • February 3, 2012 at 2:55 am
      chermes55
      Participant
      Yes it will definitely be nice to break some of this cabin fever. Although I never thought I would find myself excited about going to work I actually am. Thanks for the support.
      • January 29, 2012 at 4:16 am
      chermes55
      Participant

      i am seeing Dr. Jeffrey Weber at the H. Lee Moffitt Cancer Center in Tampa, Fl. im not sure as to whether it is open enrollment or not. My Oncologist had sent me over to him a few times for different trials but i was either disqualified because of radiation or for my HLA blood type. This one the only qualification i needed was to be braf+.

      • January 29, 2012 at 4:16 am
      chermes55
      Participant

      i am seeing Dr. Jeffrey Weber at the H. Lee Moffitt Cancer Center in Tampa, Fl. im not sure as to whether it is open enrollment or not. My Oncologist had sent me over to him a few times for different trials but i was either disqualified because of radiation or for my HLA blood type. This one the only qualification i needed was to be braf+.

      • January 29, 2012 at 4:16 am
      chermes55
      Participant

      i am seeing Dr. Jeffrey Weber at the H. Lee Moffitt Cancer Center in Tampa, Fl. im not sure as to whether it is open enrollment or not. My Oncologist had sent me over to him a few times for different trials but i was either disqualified because of radiation or for my HLA blood type. This one the only qualification i needed was to be braf+.

      • January 28, 2012 at 5:17 pm
      chermes55
      Participant

      ya i read the same thing. like i said very confused. i go back on wednesday so i should have some solid answers by then. This past weds. was my first dose and since i had finished my coffee about 8:30 they told me i had to wait until 10:30 to take my first dose. i will definitely ask. also im not sure if im in the part A,B,C or D. they were rushing me around getting all my test done. I have to say that i am very dissappointed in the dermatologist associated with this trial. I canceled my normal drs appt because i figured my 3 mo exams would be part of this. He barely even looked at one arm and my shins. plan on making a new appt with my previous derm. for next week he is very thorough.

      • January 28, 2012 at 5:17 pm
      chermes55
      Participant

      ya i read the same thing. like i said very confused. i go back on wednesday so i should have some solid answers by then. This past weds. was my first dose and since i had finished my coffee about 8:30 they told me i had to wait until 10:30 to take my first dose. i will definitely ask. also im not sure if im in the part A,B,C or D. they were rushing me around getting all my test done. I have to say that i am very dissappointed in the dermatologist associated with this trial. I canceled my normal drs appt because i figured my 3 mo exams would be part of this. He barely even looked at one arm and my shins. plan on making a new appt with my previous derm. for next week he is very thorough.

      • January 28, 2012 at 5:17 pm
      chermes55
      Participant

      ya i read the same thing. like i said very confused. i go back on wednesday so i should have some solid answers by then. This past weds. was my first dose and since i had finished my coffee about 8:30 they told me i had to wait until 10:30 to take my first dose. i will definitely ask. also im not sure if im in the part A,B,C or D. they were rushing me around getting all my test done. I have to say that i am very dissappointed in the dermatologist associated with this trial. I canceled my normal drs appt because i figured my 3 mo exams would be part of this. He barely even looked at one arm and my shins. plan on making a new appt with my previous derm. for next week he is very thorough.

Viewing 2 reply threads
1 2
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.