brooke
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

brooke

Forum Replies Created

Viewing 7 reply threads
1 2 3 4
  • Replies
      • September 25, 2013 at 11:19 pm
      brooke
      Participant

      I am planning on attending the Denver conference and looking forward to it! Not only am I a medical provider, but my husband was misdiagonosed with Stage IIIb melanoma. Hope to meet others there from this forum!

      • September 25, 2013 at 11:19 pm
      brooke
      Participant

      I am planning on attending the Denver conference and looking forward to it! Not only am I a medical provider, but my husband was misdiagonosed with Stage IIIb melanoma. Hope to meet others there from this forum!

      • September 25, 2013 at 11:19 pm
      brooke
      Participant

      I am planning on attending the Denver conference and looking forward to it! Not only am I a medical provider, but my husband was misdiagonosed with Stage IIIb melanoma. Hope to meet others there from this forum!

      • August 17, 2013 at 7:26 pm
      brooke
      Participant

      Hello!

      I can only imagine your anxiety! When my husband found out he had melanoma, the results were back within a week. He recently went back to the dermatologist to have two other moles removed that appeared normal, but we were being safe. It took almost two weeks for the results to come back as normal.

      I know all labs are different, but hopefully your situation is similar!

      Good luck!

      Brooke

      • August 17, 2013 at 7:26 pm
      brooke
      Participant

      Hello!

      I can only imagine your anxiety! When my husband found out he had melanoma, the results were back within a week. He recently went back to the dermatologist to have two other moles removed that appeared normal, but we were being safe. It took almost two weeks for the results to come back as normal.

      I know all labs are different, but hopefully your situation is similar!

      Good luck!

      Brooke

      • August 17, 2013 at 7:26 pm
      brooke
      Participant

      Hello!

      I can only imagine your anxiety! When my husband found out he had melanoma, the results were back within a week. He recently went back to the dermatologist to have two other moles removed that appeared normal, but we were being safe. It took almost two weeks for the results to come back as normal.

      I know all labs are different, but hopefully your situation is similar!

      Good luck!

      Brooke

      • August 8, 2013 at 5:36 pm
      brooke
      Participant

      Thank you for all your research! I read all those posts and agree that referral seems to be ideal.

      I was aware of the trial the university is conducting, the catch is that Kaiser is also running that trial. They told me if I want to be referred then I am technically declining that trial, which we don't want to do. We're sort of stuck it appears. The other road I may go is there is a MAGE-A3 trial I found in VA that he qualifies for, I may push for that. 

      Any thoughts on which trial may be better if we had the choice? Ipi vs Interferon or MAGE? We talked and thought that if were randomized to the Interferon arm, he would likely decline the trial.

      We meet with the new oncologist on Tuesday, hopefully for some answers!

      Thank you again for your wealth of knowledge and insight!

      Brooke

      • August 8, 2013 at 5:30 pm
      brooke
      Participant

      Thanks Becky! 

      • October 5, 2013 at 2:01 pm
      brooke
      Participant

      Thank you! 

      • October 5, 2013 at 2:01 pm
      brooke
      Participant

      Thank you! 

      • October 5, 2013 at 2:01 pm
      brooke
      Participant

      Thank you! 

      • August 8, 2013 at 5:36 pm
      brooke
      Participant

      Thank you for all your research! I read all those posts and agree that referral seems to be ideal.

      I was aware of the trial the university is conducting, the catch is that Kaiser is also running that trial. They told me if I want to be referred then I am technically declining that trial, which we don't want to do. We're sort of stuck it appears. The other road I may go is there is a MAGE-A3 trial I found in VA that he qualifies for, I may push for that. 

      Any thoughts on which trial may be better if we had the choice? Ipi vs Interferon or MAGE? We talked and thought that if were randomized to the Interferon arm, he would likely decline the trial.

      We meet with the new oncologist on Tuesday, hopefully for some answers!

      Thank you again for your wealth of knowledge and insight!

      Brooke

      • August 8, 2013 at 5:36 pm
      brooke
      Participant

      Thank you for all your research! I read all those posts and agree that referral seems to be ideal.

      I was aware of the trial the university is conducting, the catch is that Kaiser is also running that trial. They told me if I want to be referred then I am technically declining that trial, which we don't want to do. We're sort of stuck it appears. The other road I may go is there is a MAGE-A3 trial I found in VA that he qualifies for, I may push for that. 

      Any thoughts on which trial may be better if we had the choice? Ipi vs Interferon or MAGE? We talked and thought that if were randomized to the Interferon arm, he would likely decline the trial.

      We meet with the new oncologist on Tuesday, hopefully for some answers!

      Thank you again for your wealth of knowledge and insight!

      Brooke

      • August 8, 2013 at 5:30 pm
      brooke
      Participant

      Thanks Becky! 

      • August 8, 2013 at 5:30 pm
      brooke
      Participant

      Thanks Becky! 

Viewing 7 reply threads
1 2 3 4
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.