Melanoma Research Foundation | BrianP | Activity https://forum.melanoma.org/user/brianp/activity/ Activity feed for BrianP. Mon, 20 Apr 2026 05:41:11 -0400 https://buddypress.org/?v= en-US 30 hourly 2 a49cf40259e4d89b4ca2ea193faf161b BrianP replied to the topic Happy New Year - an update and some intel in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/happy-new-year-an-update-and-some-intel/#post-276219 Thu, 13 Jan 2022 14:55:41 -0500 Happy New Year Celeste!

I am so happy to hear that you are still getting after it despite so many challenges that have come your way. I wanted to say that my oncologist Dr. Tawbi at MDA is also very positive on the nivo-lag3 combo. He’s been very involved with that combo and thinks it will get FDA approval in 2 to 3 months. Nice to know…Read more

]]> 0619516622093626ac20075b9221454f BrianP started the topic Update from BrianP in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-from-brianp/ Thu, 13 Jan 2022 14:48:54 -0500 Been a while since I’ve posted here. I still occasionally lurk to see if I recognize names and get updates. I’m always amazed and thrilled to see Rock Stars Ed and Celeste still giving so unselfishly of their time and knowledge. They were both such a huge part of my journey. I find myself reflecting back a lot these days as just returned from…Read more

]]> 2c1dacddb965bcb766c4d4cbcf6db9b7 BrianP replied to the topic Braftovi/Mektovi + Nivo Triplet in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/braftovi-mektovi-nivo-triplet/#post-274203 Wed, 10 Feb 2021 19:10:18 -0500 Definitely celebratory worthy.  Congrats on the positive trend Tim!  Hopefully a sign of good things to come.

]]> 4b1d5a52107fb586b54bdf2c13144f14 BrianP replied to the topic Braftovi/Mektovi + Nivo Triplet in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/braftovi-mektovi-nivo-triplet/#post-273905 Fri, 15 Jan 2021 03:48:28 -0500 Thanks for the posts Tim. The details you share will certainly help others that come behind you. I look forward to hearing your great scan reports in the near future.

]]> cdec9c52d87b18a3080d6e7d7388ffaa BrianP replied to the topic Dr. Weber consult in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/dr-weber-consult/#post-273904 Fri, 15 Jan 2021 03:29:06 -0500 I’ll 2nd Celeste’s comments on Dr Weber. Straight shooter and great at breaking it down so it all makes sense. I also like the fact he is very data driven in his recommendations. He’ll also tell you if he doesn’t know the answer. I was never treated by him but got a consultation about 3 different times when I was a critical junctures in my treatme…Read more

]]> 9a13e849d5cc49daac62947b14dfb503 BrianP replied to the topic 20 year survivor - long term mpip member in the forum User https://forum.melanoma.org/forums/topic/20-year-survivor-long-term-mpip-member/#post-273882 Mon, 11 Jan 2021 20:14:58 -0500 Thanks for posting Nicky and congrats. I can so relate to those 3am log in sessions when I couldn’t sleep because my mind was going a thousand miles an hour. Prayers for all those currently going through that grind.

]]> bb4d7bda738b4e9c0a6be1a915d8dba4 BrianP replied to the topic Ipi/nivo headaches?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ipi-nivo-headaches/#post-273881 Mon, 11 Jan 2021 17:21:36 -0500 Any resolution?

]]> 2566a96e5c20824bb3bad8e67fe918ae BrianP replied to the topic Ipi/nivo headaches?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ipi-nivo-headaches/#post-273855 Fri, 08 Jan 2021 14:03:14 -0500 What Ed said!  Myself as well as several others here have had this side effect.  For some it starts mild and slowly gets worse and for others it comes on fast like you got hit by a 2×4.  Mine had gotten really bad when it was finally diagnosed and within about an hour or two of taking the prednisone the pain was gone.  Not 100% saying this is wha…Read more

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