The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

BlindSquirl

Forum Replies Created

Viewing 1 reply thread
  • Replies
      BlindSquirl
      Participant
      Dr Chen has been pretty on top of things so let’s hope he considers a longer period between dose 2 & 3.
      BlindSquirl
      Participant
      Thank you.

      She’s been pretty good about eating the “powerkraut” I make for her. Organic, raw and inocculatent with broad spectrum probiotics in 1 quart batches. The oncologists staff has commented every time on how good her immune system was doing. Apparently even the Braftovi/Maktovi combo usually does a number on immune system.

      I’m with her now & she’s miserable, retaining fluid,still waiting to hear about the MRI & thoracentisis.

      BlindSquirl
      Participant
      Thank you Celeste

      I’ve quoted quite a few of your posts to my wife.

      With my layman’s understanding of those 2 reports, it looks like getting the 1st 2 rounds of ipi/nivo then switching to nivo alone were almost as effective as getting the entire regimen?

      I’m still curious about the shrinking mets in her arm pit after the 1st treatment.

      She completely changed her diet just before starting ipi/nivo, mostly veggies (organic when possible) a little fruit, as a treat and occasionally, clean animal protein, i.e.organic eggs, grass-fed lamb, wild caught smaller fish (nothing from the top of the foodchain like tuna or swordfish), as little processed food as possible.

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics