Melanoma Research Foundation | Alydar77 | Activity https://forum.melanoma.org/user/alydar77/activity/ Activity feed for Alydar77. Mon, 06 Apr 2026 15:01:26 -0400 https://buddypress.org/?v= en-US 30 hourly 2 db260cc70d60a38f109359ea54ab0a1a Alydar77 started the topic Any success taking Ippi and Nivo the 2nd time? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/any-success-taking-ippi-and-nivo-the-2nd-time/ Wed, 14 Jun 2023 14:29:58 -0400 I had a recurrence in my right lung in February and had my right lower lobe removed on 3-29-23. I had a pet scan on 6-6-23. It showed up a couple enlarged lymph nodes around my lung and a tumor on my adrenal glands.
My last dose of Nivo was 3-14-17. I took it for 17 months and started out with 4 doses of ippi with nivo. I had a great response.
My…Read more

]]> fa48d60a144da33084d9f4cf9d00a398 Alydar77 started the topic Recurrence and worried. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrence-and-worried/ Tue, 21 Mar 2023 02:44:09 -0400 After being off of nivo and ippi for 6 years I have a recurrence in my right lung. I was stage 4 with tumors in my liver, lungs and pancreas. I was BRAF positive and started Mekinist and Tafinlar. I stayed on this for 6 months until progression. Then I started nivo and ippi for 17 months. I had clear scans for 7 years until now.

Had a pet scan…Read more

]]> 3a05326ca6344da4da7bca7e4473f323 Alydar77 replied to the topic Worried about maybe a recurrence in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/worried-about-maybe-a-recurrence/#post-278070 Thu, 12 Jan 2023 04:46:37 -0500 Thank you for your response. I contacted my oncologist and they are going to let me know what they think. I have been very blessed to have clear scans for 7 years.

]]> 86dc271f47d49d6463c87af8e9b7d449 Alydar77 started the topic Worried about maybe a recurrence in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/worried-about-maybe-a-recurrence/ Sun, 08 Jan 2023 21:51:17 -0500 I had my last treatment of nivo on march 2017. I was on treatment for 17 months. My pet scans are out to every year now. I have had a 2.4 x 2.2 cm right lung mass for 5+ years that hasn’t changed nor lights up on my pet scan.

I recently had a ct scan due to a kidney stone and it showed up a 4.6 x2.8 cm partially calcified right lung mass. My l…Read more

]]> 462dd32b18009753883e0c42e544e31f Alydar77 became a registered member https://forum.melanoma.org/activity/p/42227/ Sun, 08 Jan 2023 21:37:25 -0500 0