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Ace226

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      Ace226
      Participant

      Thank you. Wondering if I could email someone there. I will try. We went up to MSK in the past and they basically said our hospital was doing everything so I am  hesitant to fly him to Houston without knowledge that they can help. I will reach out. I appreciate it!

      Ace226
      Participant

      Thank you. Wondering if I could email someone there. I will try. We went up to MSK in the past and they basically said our hospital was doing everything so I am  hesitant to fly him to Houston without knowledge that they can help. I will reach out. I appreciate it!

      Ace226
      Participant

      Thank you. Wondering if I could email someone there. I will try. We went up to MSK in the past and they basically said our hospital was doing everything so I am  hesitant to fly him to Houston without knowledge that they can help. I will reach out. I appreciate it!

      Ace226
      Participant

      Thanks for the links. The Remicaid seems to be doing the trick. Thank goodness. I will make sure my dads oncologist is aware of these studies. I know she mentioned the Eli Lilly one in the last but had said the melanoma arm was closed for a period of time. I can't really tell from this but hopefully it is back open. Thanks again!

      Ace226
      Participant

      Thanks for the links. The Remicaid seems to be doing the trick. Thank goodness. I will make sure my dads oncologist is aware of these studies. I know she mentioned the Eli Lilly one in the last but had said the melanoma arm was closed for a period of time. I can't really tell from this but hopefully it is back open. Thanks again!

      Ace226
      Participant

      Thanks for the links. The Remicaid seems to be doing the trick. Thank goodness. I will make sure my dads oncologist is aware of these studies. I know she mentioned the Eli Lilly one in the last but had said the melanoma arm was closed for a period of time. I can't really tell from this but hopefully it is back open. Thanks again!

      Ace226
      Participant

      I saw that but wasn't sure you could get it in the US yet? Hopefully soon. Thank you. 

      Ace226
      Participant

      I saw that but wasn't sure you could get it in the US yet? Hopefully soon. Thank you. 

      Ace226
      Participant

      I saw that but wasn't sure you could get it in the US yet? Hopefully soon. Thank you. 

      Ace226
      Participant

      Thank you! He finally got his first dose of Remicaid on Monday and the vomiting has ceased. He is still having some diarrhea but the urgency is gone… Hopefully this will get better with time. I appreciate your help! 

      Best,

      Alex

      Ace226
      Participant

      Thank you! He finally got his first dose of Remicaid on Monday and the vomiting has ceased. He is still having some diarrhea but the urgency is gone… Hopefully this will get better with time. I appreciate your help! 

      Best,

      Alex

      Ace226
      Participant

      Thank you! He finally got his first dose of Remicaid on Monday and the vomiting has ceased. He is still having some diarrhea but the urgency is gone… Hopefully this will get better with time. I appreciate your help! 

      Best,

      Alex

      Ace226
      Participant

      Thank you for everyone's reponse! 

      When I call these center's, I understand I state that we want a second opinion and then they will request the medical record's.  Is this correct?  Will they then just put him with whoever is available or can I request a specific doctor?

       

      Ace226
      Participant

      Thank you for everyone's reponse! 

      When I call these center's, I understand I state that we want a second opinion and then they will request the medical record's.  Is this correct?  Will they then just put him with whoever is available or can I request a specific doctor?

       

      Ace226
      Participant

      Thank you for everyone's reponse! 

      When I call these center's, I understand I state that we want a second opinion and then they will request the medical record's.  Is this correct?  Will they then just put him with whoever is available or can I request a specific doctor?

       

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