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Recently diagnosed with Stage IV mucosal melanoma
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Recently diagnosed with Stage IV mucosal melanoma

› Forums › Mucosal Melanoma Community › Recently diagnosed with Stage IV mucosal melanoma

  • Post
    • July 9, 2015 at 11:21 pm
    Rawlins Mom
    Participant

      Several week lurker, first time poster

      My mother was diagnosed with mucosal melanoma (lady parts…not fun!) at the end of May.  She had surgery to remove the main lesion, and the PET scan showed several mets to the liver, lymph nodes, and one to the brain.  She had specific radiation on the brain tumor (not sure the exact procedure), finishes her daily targeted radiation today (4 weeks total I believe), and started on Keytruda 2 weeks ago.  Side effects so far are actually OK.  Some fatigue, and an imodium here and there, but overall OK.  

      I really appreciate all the posts here, both the uplifting ones and not so much also.  Puts things into perspective, and now I know that there are many options down the line.  

       

    Viewing 5 reply threads
    • Replies
        • July 10, 2015 at 1:44 am
        CHD
        Participant

          Mine was vulvar melanoma, though it was stage I-II, and have had 3 vulvar surgeries since 2013.  I have to say nothing about vulvectomy is fun, but in my case it seems to have gotten rid of the melanoma and that's the important thing.  I am glad your mom is doing well with few side effects from the keytruda.  Here's hoping the keytruda works wonders for her!   

          Cheri

          • July 10, 2015 at 1:44 am
          CHD
          Participant

            Mine was vulvar melanoma, though it was stage I-II, and have had 3 vulvar surgeries since 2013.  I have to say nothing about vulvectomy is fun, but in my case it seems to have gotten rid of the melanoma and that's the important thing.  I am glad your mom is doing well with few side effects from the keytruda.  Here's hoping the keytruda works wonders for her!   

            Cheri

            • July 10, 2015 at 1:44 am
            CHD
            Participant

              Mine was vulvar melanoma, though it was stage I-II, and have had 3 vulvar surgeries since 2013.  I have to say nothing about vulvectomy is fun, but in my case it seems to have gotten rid of the melanoma and that's the important thing.  I am glad your mom is doing well with few side effects from the keytruda.  Here's hoping the keytruda works wonders for her!   

              Cheri

              • July 10, 2015 at 3:15 pm
              dfeng
              Participant

                Best wishes!

                  • July 11, 2015 at 1:55 am
                  tschmith
                  Participant

                    I hope the Keytruda works.  I had good results with it.

                    All my best to her!

                    Terrie

                    • July 11, 2015 at 1:55 am
                    tschmith
                    Participant

                      I hope the Keytruda works.  I had good results with it.

                      All my best to her!

                      Terrie

                      • July 11, 2015 at 1:55 am
                      tschmith
                      Participant

                        I hope the Keytruda works.  I had good results with it.

                        All my best to her!

                        Terrie

                      • July 10, 2015 at 3:15 pm
                      dfeng
                      Participant

                        Best wishes!

                        • July 10, 2015 at 3:15 pm
                        dfeng
                        Participant

                          Best wishes!

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