Melanoma Research Foundation | THMoore | Activity https://forum.melanoma.org/user/thmoore/activity/ Activity feed for THMoore. Tue, 21 Apr 2026 21:04:05 -0400 https://buddypress.org/?v= en-US 30 hourly 2 e6db4b98a321f9d17bd1f69834c8db20 THMoore started the topic Should I take While Brain Radiation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/should-i-take-while-brain-radiation/ Tue, 07 Sep 2021 19:03:17 -0400 I was diagnosed in January of FY20.  Unknown primary of my parotid gland. Anyway fast forward to 6 months ago. I was on IPI/NIVO and doing fine. Got colitis, then myositis.  The doctors dropped the ball at MDA and didn’t run a MRI like they always have. Blamed COVID and pushed to a different doctor that misdiagnosed me with arthritis. So I did not…Read more

]]> 330c9e9c7a117114f672812675bf285e THMoore replied to the topic Whole Brain Radiation Assistance in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/whole-brain-radiation-assistance/#post-275585 Wed, 01 Sep 2021 22:08:05 -0400 How big were your lesions and are you on any treatment.  We’re you on treatment before you were diagnosed.

]]> 9ffecec8bc72c4246f533cf4b7d6c78f THMoore started the topic Whole Brain Radiation Assistance in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/whole-brain-radiation-assistance/ Tue, 31 Aug 2021 19:27:18 -0400 <!–more–>I was just informed I will require whole Brain radiation.  Can anyone tell me their experience’s?  Or how you are doing.  I was scheduled for gamma knife but lesions grew to quickly. Please advise. Backed in a corner and scared.

sincerely

Trent

 

]]> d3dde38b549a9ad77014a70256166ce2 THMoore started the topic Whole Brain Radiation in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/whole-brain-radiation-5/ Tue, 31 Aug 2021 19:26:06 -0400 I was just informed I will require whole Brain radiation.  Can anyone tell me their experience’s?  Or how you are doing.  I was scheduled for gamma knife but lesions grew to quickly. Please advise. Backed in a corner and scared.

sincerely

Trent

 

]]> 5626f22a34a0b875b7245102a3d8d3af THMoore started the topic Arthritis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/arthritis/ Thu, 17 Jun 2021 15:13:46 -0400 I was on NIVO and IPI/NIVO and then NIVO once again until : months ago.  I have developed severely arthritis in most all joints and now cannot get up out of a chair without help.  Has anyone else experienced this?  How are you now?

Trent

]]> 36a8dbd130823512b369a08d692f26d5 THMoore replied to the topic Seriously Confused Need some assistance and optimism in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/seriously-confused-need-some-assistance-and-optimism/#post-274830 Sat, 29 May 2021 00:23:15 -0400 I appreciate everyone’s input. My confusion is I had 2. Complete responses and now I have a total tumor burden of the size of your index finger nail. I thought the oncologist would of put me on a clinical trial at a phase 2 level that had anywhere from a 10 to 40% success rate.  Here is a copy of the trial phase 1,…Read more

]]> 3bb29b4399bfd9dbd59e95e7740c1779 THMoore replied to the topic Seriously Confused Need some assistance and optimism in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/seriously-confused-need-some-assistance-and-optimism/#post-274803 Fri, 28 May 2021 00:00:15 -0400 Ed

The lead oncologist at MDA just cAlled. 6 PM. He met with the entire oncology team to include De James Allison.  They have decided to place me on Phase 2 of (Dragonfly) or IL12 plus NIVO or KEYTRUDA. I have had great and complete responses with both IPI and NIVO. He explained that in theory. The IL12 should help. He explained the low burden…Read more

]]> 201f01b0e1b15cabd47aec0abdd48d16 THMoore started the topic Seriously Confused Need some assistance and optimism in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/seriously-confused-need-some-assistance-and-optimism/ Thu, 27 May 2021 20:42:14 -0400 Just 3 months ago, I had my quarterly scans completed. Results were as follows:

5 nodes in my Neck are clear, Brain is clear,  3 inch Liver tumor is completely clear ( Prays GOD ) but the nodes in my lungs have grown too 6MM and we’re active on a PET.  The doctor was highly surprised but confused about my lungs.

The oncologist was thinking and…Read more

]]> 7931f68761e3d3406bb41d94341b81c1 THMoore replied to the topic Liver Mets and immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/liver-mets-and-immunotherapy/#post-274777 Tue, 25 May 2021 01:10:10 -0400 Hi Christina,
I was diagnosed March 1 2020 after 5 misdiagnoses. I had a lump pop up on my neck, and during surgery at MDA, it was determined I had melanoma of the Parotid gland. No skin cancer ever. So I am a Non Primary, and non V600. Anyway, fast forward to today one year later, I have had surgery, and 2 weeks after 30 grey of radiation,…Read more

]]> 01f574050d4a93f90be91d45f827939e THMoore replied to the topic Update on Yesterdays Scans ( Finally some good news ) 80% Response in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-on-yesterdays-scans-finally-some-good-news-80-response/#post-274323 Sat, 06 Mar 2021 17:29:28 -0500 Miss Bubbles,

what scares me is the PET radiologist explained the growth of the lung nodes was probably due to metastasis.  They did explain they are confused because the size of the large liver tumor and all neck nodes were no longer cancerous.  The live tumor is there but they explained you can see the outline but everything else is t…Read more

]]> 75fc4faf1cec6a6e1e38ba0ce0587df7 THMoore replied to the topic Update on Yesterdays Scans ( Finally some good news ) 80% Response in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-on-yesterdays-scans-finally-some-good-news-80-response/#post-274311 Thu, 04 Mar 2021 23:08:22 -0500 Thanks for the kind words Miss Bubbles. The PET SUV uptake in all 4 nodes was 1.5, which they say is very low and hopefully inflammation.   ❤️

]]> 5554f83e737b1d356378948824189496 THMoore started the topic Update on Yesterdays Scans ( Finally some good news ) 80% Response in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-on-yesterdays-scans-finally-some-good-news-80-response/ Thu, 04 Mar 2021 01:52:59 -0500 To my warrior team.  It’s been a while since I have posted. I hate that we lost all our profile information.  It’s like everyone has to start over describing their stages and history.  Anyway, I was diagnosed March 1 2020 after 5 misdiagnoses.  I had a lump pop up on my neck, and during surgery at MDA, it was determined I had melanoma of the Par…Read more

]]> ddca08bbcbf10c4621769bec5c352b21 THMoore replied to the topic Colitis Pembrolizumab (Immunotherapy) + Lenvatinib. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/colitis-pembrolizumab-immunotherapy-lenvatinib/#post-274177 Sun, 07 Feb 2021 23:43:45 -0500 I got colitis after my third combo treatment. MDA did a colonoscopy and put me on infusions of vedolizumab once a month while I continue on immunotherapy. It literally stopped my issues in less then 24 hours. Haven’t had any issues since. Wished I had got it right away but the idiot local doctors wanted me on prednisone and anti diarrhea drugs. C…Read more

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