Melanoma Research Foundation | SaraB | Activity https://forum.melanoma.org/user/srs85/activity/ Activity feed for SaraB. Wed, 22 Apr 2026 22:54:37 -0400 https://buddypress.org/?v= en-US 30 hourly 2 6fdca278a420eea12052a74a2be829a7 SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280404 Tue, 30 Jul 2024 01:27:53 -0400 Thanks, Mark!

Overall, we’ve still been very happy with the team at UMMC, and Dr. Hausner is one of the melanoma specialists listed on the AIM website (https://www.aimatmelanoma.org/melanoma-learning-center/find-a-melanoma-specialist/maryland/), along with Sharfman (who mentioned that he knows Hausner very well, btw) and Lipson. I think we’ll…Read more

]]> 60749a3221f0a0c9cb68dbf69eee4a42 SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280391 Wed, 24 Jul 2024 19:55:37 -0400 Thanks, Ed! I definitely answered all of the questions and maxed out the characters on the first two. Judging from the responses in the “warriors” FB group it looks like I’m not the only one having issues.

]]> 02df3677bd0d3023bd823254895b8434 SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280389 Wed, 24 Jul 2024 15:04:59 -0400 Thanks for sharing your experience! You’re the second person to suggest Dr. Weber and I think I will try emailing him today to get a 3rd opinion. My wife just took her first full dose of Braftovi/Mektovi today after a 5-day half-dose ramp up period, and we have a tele-visit with her specialist scheduled for tomorrow mainly just to check in.…Read more

]]> 18d7ddb71df35aa305912535f21be541 SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280385 Mon, 22 Jul 2024 18:42:18 -0400 Thank you for replying, Judi. I don’t know what to say about the controversy regarding the steroids, but our 2nd opinion doctor did essentially confirm our first doctor’s stance that starting the Opdualag while still taking Dexamethasone (unless it was down to only about 1-1.5mg per day) would detract from its effectiveness, and at this point we…Read more

]]> 721b650f92131dc93753c33829b9ff84 SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280379 Wed, 17 Jul 2024 22:01:42 -0400 Quick update: today we visited with Dr. Sharfman for the first time to get a 2nd opinion on things, and then had a follow-up with Dr. Hausner as well.

Good news is that (1) my wife’s symptoms have pretty much all dissipated with the use of the Dex steroid, (2) both doctors appear to be on the same page with treatment options, at least for now,…Read more

]]> 5c18c4f357ee173f4ab99a98f145825f SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280377 Wed, 17 Jul 2024 01:03:36 -0400 Thanks so much for the reply, Ed! Pretty much all of what you’ve said here falls in line with what we heard from Dr. H, and hopefully my wife can get through the edema issues in the brain and this extended period of steroid use as soon as possible. We’ve heard that it just takes longer for some folks and I guess she is in that camp.

I have a…Read more

]]> fcecdfc103b91fb3cf9d8b598fe72a99 SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280372 Tue, 16 Jul 2024 02:49:25 -0400 Hi Celeste,

Thank you so much for your response and all of this helpful information (and the hope that it provides)! And you are correct – my wife was slated to begin with her first infusion of Opdualag this past Thursday (7/11), with her last fraction of radiation being 6/5. We were originally trying to start earlier, but she did not do well…Read more

]]> 70c14fb189b24806c14ee0ecdd0bb20a SaraB replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280370 Mon, 15 Jul 2024 13:36:47 -0400 Thanks so much, Mark! I will start looking into your recommendations. Please let me know if you have any suggestions for groups on Facebook… just starting to look and it appears there are quite a few options. Thanks again!

]]> c59ebd8e697063c86b555091a68a1f42 SaraB started the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/ Mon, 15 Jul 2024 01:39:13 -0400 Hi all,

I am new to the forum and here representing my wife, Sara, who was diagnosed with stage IV melanoma this past April and is currently reaching the next stage of treatment options. Just hoping for any advice, words of wisdom, similar stories, hope, etc. I’ll do my best to summarize her situation here, but it’s been quite an unusual rol…Read more

]]> 448405c3bca00f571ed038f24192cb7a SaraB became a registered member https://forum.melanoma.org/activity/p/124018/ Mon, 15 Jul 2024 00:56:48 -0400 0