https://forum.melanoma.org/user/rl11/activity/ Activity feed for RL. Wed, 08 Apr 2026 07:13:37 -0400 https://buddypress.org/?v= en-US 30 hourly 2 3b9fc2a0415aec8e75ef7f0bfdaa86e7 https://forum.melanoma.org/forums/topic/braf-g469a-whos-the-best-doc/ Fri, 10 Sep 2021 14:30:41 -0400 Does anyone on the forum have the BRAF G469A mutation? If so, can you kindly share who your oncologist is? I’d like my mom to get a 2nd opinion for treatment of her Stage 4 melanoma, but I would prefer it to be a specialist with experience with this rare mutation. We’re having significant issues getting insurance to cover targeted therapy because…Read more

]]> 40095add9950732b20dea1134a46b60d https://forum.melanoma.org/forums/topic/stage-4-4/#post-275659 Fri, 10 Sep 2021 14:25:16 -0400 Her pharmacist applied for Pfizer’s financial assistance program for cash paying customers. They denied her because her household income is slightly over their cut off. Which is ridiculous because these drugs cost about $25k per month. I wonder if the copay assistance program would work since her insurance has completely denied coverage of these…Read more

]]> 5711aea46e0274ddae37cbf7ca877ead https://forum.melanoma.org/forums/topic/stage-4-4/#post-275658 Fri, 10 Sep 2021 14:22:19 -0400 Thanks, Ed! I let my mom know that people have had good experiences with Dr. Weber. I wonder if he will do telehealth appointments with patients in other states as travelling to NY is pretty big trip for her, especially with the pandemic.

]]> 112c4172a46010f5aad24b8975687bdf https://forum.melanoma.org/forums/topic/stage-4-4/#post-275648 Thu, 09 Sep 2021 17:21:17 -0400 Hi Ed, She was not yet stage 4 when undergoing Opdivo, but she did have a recurrence of melanoma post-surgery while going through Opdivo treatment. My mom has pre-existing GI issues that caused severe complications while in treatment and even for 6 months after treatment. It also caused her pancreas to atrophy. Her oncologist is at Emory.

]]> 47a3bd1e0556389c8550aacf8e4d977a https://forum.melanoma.org/forums/topic/stage-4-4/#post-275647 Thu, 09 Sep 2021 17:18:02 -0400 Thank you, Celeste! You are so kind. I’ve sent your list of doctors to my mom so she can get a 2nd opinion. She’s seeing a melanoma specialist at Emory, but I still would feel much better with a 2nd or 3rd opinion.

]]> 75b95ea3eb5da7b6ce1ffc7f8517352d https://forum.melanoma.org/forums/topic/stage-4-4/ Thu, 09 Sep 2021 12:54:23 -0400 We recently learned my mom’s melanoma is now Stage 4, in her lungs. She’s done opdivo in the past with many complications that left her in the hospital. Her melanoma is BRAF G469A. Dr prescribed Braftovi/Mektovi. Insurance denied it and Pfizer won’t help with costs either. Now dr has prescribed Zelboraf/Cotellic. Insurance will cover Zelboraf but…Read more

]]> eb6add7388892fe47bc11d9e6735565e https://forum.melanoma.org/activity/p/7679/ Thu, 09 Sep 2021 12:38:14 -0400 0